I saw my niece over the weekend. She just turned seven. She had a bit of a fever and wasn’t feeling very well, so when I saw her snuggled up on the couch under a blanket, she looked every bit the little kid she is. Poor little peanut, hiding out until she felt better.
I remembered that I was about her age when I was diagnosed.
I found an old school photo from second grade, with me sitting next to my friend Bobby (who I still talk to, which is a very surreal experience, hanging out with someone I’ve known longer than I’ve known insulin injections). I was diagnosed in September, right as second grade started.
Swinging my feet. Not much for sitting still, even in second grade.
Over the last few days, I’ve been reading some emails from the CWD parents as they gear up for the Friends for Life conference in Orlando in a few weeks. These emails are sent out to a whole mailing list of attendees, and somehow I ended up on the list with all the parents. (Or maybe the list just happens to be mostly parents and I just happen to be an adult “kid” with diabetes.) These parents are comparing notes and reaching out to one another, looking forward to other parents who understand what they’re going through every day as they care for their kid with diabetes.
And I wish that my mother had this kind of support when she was dealing with my diagnosis over twenty years ago. My mom had a lackluster team of doctors at the Rhode Island Hospital (where I went for a few months before going to Joslin) and Eleanor (the only other mother of a diabetic kid that we knew of in our town and the woman who just happens to be my local Dexcom rep), leaving her with little to manage the enormous learning curve.
This weekend, I went on a bike ride with my sister-in-law, my father-in-law, and my husband. I had to remember to test beforehand, bring my meter, stash some glucose sources on several people, and monitor as re rode. A lot of thought for maybe an hour long bike ride. And it made me wonder what kind of preparation and worry my mother went through when she sent me out to play for a whole Saturday afternoon. Lot of work on my mom’s part just to keep things normal.
I forget this sometimes, how many people are really involved in keeping me healthy.
I need to call my mom.
(Granted, my diabetes diagnosis hasn’t kept me from doing much at all. And it definitely didn’t keep me from being … um, a bit of a goofball.)
*This blog post was originally published at Six Until Me.*