I have meet several amazing people at my new job. Here is one of them: Richard Vaughn (photo credit). The poster isn’t accurate any longer, the 12 should read 20.
Richard is the IT guy at my work place. He broke his back at age 17. This hasn’t kept him from having a full life.
……Shortly after graduation as a 17 year old, a severe accident – a fall of roughly 85 feet from a scaffolding – left me paralyzed and in a wheelchair. This was in the early 1970s. It was suggested that I enter one of several “special schools” for the handicapped. There, I was told, I might learn a vocation and become a “contributing member of society.” Read more »
*This blog post was originally published at Suture for a Living*
“There is a better way – structural reforms that empower patients with greater choices and increase the role of competition in the health-care marketplace.” Rep. Paul Ryan (R-WI) August 3, 2011
The highly charged political debates about reforming American health care have provided tempting opportunities to rename the people who receive health services. But because the impetus for this change has been prompted by cost and quality concerns of health care payers, researchers and policy experts rather than emanating from us out of our own needs, some odd words have been called into service. Two phrases commonly used to describe us convey meanings that mischaracterize our experiences and undervalue our needs: “empowered patient” and “health care consumer.”
As one who has done serious time as a patient and who spends serious time listening to talks and reading the literature that use these words to describe us, I ask you to reconsider their use.
“Empowered patient” The fabrication of the verb “to empower” from the noun “power” was used in the civil rights and community development movements to describe a benevolent bestowal of influence on disenfranchised individuals and groups by those who had previously excluded them. When used in relation to health care, the word perpetuates the idea that we are passive entities, waiting to be gratefully endowed by our clinician or a new policy with the right and ability to act on our own behalf. Our “empowerment” takes place not as a result of our own will or preference, but rather because we have been given permission to act in a different way by some external agent.
This word is Read more »
*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*