The New York Times has a series called “Patient Voices” which gives insights from the patients with the disease, physical and emotional changes in their lives, and accommodations made. The most recent series is on patients with alopecia (hair loss).
“The Voices of Alopecia” by Tara Parker-Pope (July 6, 2010):
This week, Patient Voices explores alopecia, an autoimmune disease that leads to a few bald patches to the loss of every hair on a person’s body.
To hear what it’s like to live with alopecia, listen to the Patient Voices audio slideshow that features adults, children and their parents who are coping with the condition.
Listen to these seven people tell what it’s like to live with alopecia:
– Matt Kelly, 43, lost his hair at age 38 over a 6 week time span.
– Jennifer DeFreece, 29, developed alopecia totalis as a child.
– Margaret Staib, 42, an artist with three daughters.
– Rafi Wasselman, 16, says his best medicine is his collection of caps.
– Maureen McGettigan, 47, began losing her hair at age 16.
– Annie Kazmi, 33, tells her daughter Noori’s story. Then Noori tells her own. Read more »
*This blog post was originally published at Suture for a Living*