May 7th, 2011 by DavedeBronkart in Health Tips, Opinion
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A vital aspect of participatory medicine is helping patients learn how to participate. This week I saw a great example of someone who’s doing it right. Here’s the story, including the patient aid for download.
We hear a lot about “patient-centered”: patient-centered care, patient-centered thinking, everything. Frankly, a lot of it strikes me as patient-centered paternalism: people mean well, but patients sense that the thinking didn’t happen while standing in patients’ shoes, because the advice, policies, and publications just don’t hit home. It’s like somebody guessed what you want, instead of knowing (because they’re like you).
A couple of years ago I learned about Planetree, a terrific, small organization in Connecticut that’s been thinking from the patient’s point of view for thirty three years. (Yes, since 1978. Why are they not better known??)
This week I attended a live webcast at a “Planetree designated” hospital, Griffin Hospital, in Derby CT, produced by HealthLeaders Media. When somebody’s truly patient centered, you rarely hear a puzzled “Do people really need that?” or “Isn’t this good enough?”, because they start with what patients want. (See founders’ story at bottom.)
A great example is this booklet about CHF (congestive heart failure), which Griffin Hospital was kind enough to share. (Click the image to download the entire PDF, (1.7MB).) In my day job I did a bit of instructional development, so I can appreciate how well this was done: the “to-do” items are clearly presented, with NO extraneous explanation, and top-class use of icons and images. It’s all essential information, clearly presented, and nothing else. It’s what you need to do to succeed as a patient. Read more »
*This blog post was originally published at e-Patients.net*
November 2nd, 2010 by Dr. Val Jones in Health Tips, Video
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The Internet has revolutionized how we receive information – and it’s also changing how we learn about and manage our health. A new “ePatient” movement promises to empower patients with online and mobile tools – making it easier than ever to contact a physician, track health variables, and join a support group.
Four minutes isn’t much time to summarize an entire movement, and I think I got a little off topic while suggesting a new use case for David Hale’s NIH PillBox (a pill identifier tool). I said it could be used to identify pills even after your pet licked part of the label off them!
httpv://www.youtube.com/watch?v=pVcm-Xzc0Sc
For more information about ePatients, check out my earlier blog post.
July 13th, 2010 by EvanFalchukJD in Better Health Network, Health Policy, News, Opinion, Research, True Stories
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If a website touted misleading healthcare information, you’d hope the government would do something about it. But what do you do when the government is the one feeding the public bad information?
Last week the Obama administration launched the new Healthcare.gov. It’s mostly an online insurance shopping website. It’s very much a federal government version of sites like eHealthInsurance.com or Massachsetts’ HealthConnector site, which have been around for years.
So when HHS Secretary Kathleen Sebelius, in announcing the new site, claims it gives consumers “unprecedented transparency” into the healthcare marketplace, you should wonder what she means. But that’s not the big problem with this site. Read more »
*This blog post was originally published at See First Blog*
January 12th, 2010 by KerriSparling in Better Health Network, Medblogger Shout Outs, Opinion, Patient Interviews
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Quick post to the PR professionals in the healthcare sphere:
When someone dies, it is terrible tragedy. That person leaves behind a family, loved ones, and – especially when they die young – their future. If someone dies as a result of diabetes, or due to complications from diabetes, or from something else entirely but they happened to have diabetes, and you decide to exploit their death to gain pageviews for your website? (See also: Brittany Murphy, Casey Johnson)
Come on.
There’s a difference between passing on information that could help people improve their lives, and then there’s pure, TMZ-style exploitation. Read more »
*This blog post was originally published at Six Until Me.*
December 11th, 2009 by PhilBaumannRN in Better Health Network, Interviews, Patient Interviews
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Dave deBronkart is a Freedom Fighter. In 2007, Dave battled metastatic cancer and emerged a passionate advocate for leveraging the Web to connect patients with the content and support and inspiration they need to cope with the human consequences of disease.
The Web has brought forth new ways of connecting the world and brings with it questions and answers about how to safely and effectively extend the power of health care from face-to-face meetings to remote but important regions of human experience. It’s important for us to understand the integrative nature of health care: no single perspective will yield approaches that work. Rather, we will need the perspective of all participants. Read more »
