As we often say at Patient Power, there is no one source for medical information. The same is true when it comes to support for patients. No one organization is THE place to go and has all the answers.
That may sound obvious. But just as it has taken a long time to dislodge the “Doctor as God” perception or “I’m the doctor and you’re not” put-down of “problem patients,” there have been some non-profit advocacy groups that have seen themselves as the “be all and end all” for conditions they cover. In both cases, the arrogant doctor and the “100,000 pound gorilla” organization, neither took what I call the “big tent” view. In their view, they were the tent and there was no room for anyone else. That’s never been our view and I wanted to tell you how we are celebrating our relationships with a multitude of partners, many of whom are becoming friends. Read more »
*This blog post was originally published at Andrew's Blog*