August 13th, 2010 by DavedeBronkart in Better Health Network, Health Policy, Opinion, True Stories
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Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio.
This item has nothing to do with OpenNotes itself –- it’s what I’m seeing now that I’ve started accessing my doctor’s notes. In short, I see the clinical impact of not viewing my record as a shared working document.
Here’s the story.
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In OpenNotes, patient participants can see the visit notes their primary physicians entered. Note “primary,” not specialists. I imagine they needed to keep the study design simple.
So here I am in the study, going through life. Five weeks ago I wrote my first realization: After the visit I’d forgotten something, so I logged in. Read more »
*This blog post was originally published at e-Patients.net*
December 11th, 2009 by PhilBaumannRN in Better Health Network, Interviews, Patient Interviews
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Dave deBronkart is a Freedom Fighter. In 2007, Dave battled metastatic cancer and emerged a passionate advocate for leveraging the Web to connect patients with the content and support and inspiration they need to cope with the human consequences of disease.
The Web has brought forth new ways of connecting the world and brings with it questions and answers about how to safely and effectively extend the power of health care from face-to-face meetings to remote but important regions of human experience. It’s important for us to understand the integrative nature of health care: no single perspective will yield approaches that work. Rather, we will need the perspective of all participants. Read more »
November 3rd, 2009 by BarbaraFicarraRN in Better Health Network, Opinion
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Part 1 in a series on the e-patient and participatory medicine
There’s no question that today’s patients are savvy. Today’s patients are e-patients. Surrounded by technology, researching health information on the Internet has never been easier. Patients are engaging in communities and social networking sites and the exchange of information between patients has proven invaluable to some.
When patients visit their doctor and other health care professionals, many are armed with questions and they are not satisfied until they get answers. Patients are empowered and they want to be engaged in a relationship with their doctors and other health care professionals. They want respect, collaboration and connection. Read more »
*This blog post was originally published at Health in 30*
September 26th, 2009 by eDocAmerica in Better Health Network, Opinion
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By Charles Smith, MD
This post is adapted from one I wrote last week on e-Patients.net Blog.
Matthew Herper’s post about thalidomide treatment of Myeloma is a good example of how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment approaches.
Read more »
*This blog post was originally published at eDocAmerica*
August 10th, 2009 by eDocAmerica in Better Health Network, Opinion
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Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (health care professionals, patients, caregivers, etc.)
When patients are aware of such things as their weight, BMI, blood pressure, recent key laboratory results, and so on, and when they come to the office motivated and prepared, outcomes are likely to be much better. The patient who passively waits for advice and direction from the physician is more likely to forget instructions, make excuses for failures, lack the discipline to lose the needed weight or stay on the required diet, and so forth.
Patients themselves, not their doctors, must be the ones to make the essential decisions about their health. They must be able to obtain the necessary information to make key decisions, then act on them.
How does this process happen? A patient may agree with this statement and want to begin to operate in this mode, but not know how to do it. Here is a short list of the essential steps necessary to begin the practice of participatory medicine:
1. If possible, find a physician who understands, and supports, this concept, including one who is willing to communicate with you by e mail and directly answer your phone calls.
2. Consider the option of using a service like edocamerica, that is dedicated to providing you with the information necessary to make decisions about your own health care. They can supplement your physician and are available to you 24/7 and always welcome your questions. Moreover, they are dedicated the concept of PM and are oriented towards health and wellness, not just managing your diseases.
3. Start following blog and twitter posts by persons who are now actively discussing how Participatory Medicine is going to change the way health care is practiced.
4. Keep a current list of your medications, including the Brand name, generic name, dose and frequency of each one.
5. Look up the most common side effects of each of your medications.
6. Check your medications for any drug-drug interactions. You can use a web site such as drugstore.com for this.
7. Keep a list of all of your current medical conditions and review the basic information about each of them. A site such as Mayo Clinic or Medicine Net are good, trustworthy sources for this review.
8. Start making a list of questions that you want your doctor to answer for you. If he doesn’t have time to answer all of them at the next visit, ask him if you can e mail them to him. If not, ask one or two at each visit until you get them all answered. If you can’t get him to address all of your questions in a satisfactory and timely fashion, consider getting another doctor who will.
Participatory medicine, working on an equal footing with your provider, in a partnership for your optimal health, is the only way you can get the most out of the health care system. So, get on the train before it leaves the station!
Your comments and dissenting opinions are always welcome.
*This blog post was originally published at eDocAmerica*
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio.
