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Latest Posts

Making A Human Connection: Meeting Other People Dealing With The Same Disease

Remember when people in the waiting room at a doctor’s office were all reading magazines? It was quiet as each person waited for their name to be called. Even if you went to a specialist’s office, no one dared say “I’m here for _____. What brings you here to see Dr. ____?” No one “shared” even if, just maybe, they had a very similar health concern to the person next to them. Makes sense, health is a private matter, right? Well many people I know don’t feel that way. They feel the benefits of connecting with other patients far outweigh the risks.

The other day I was in Atlanta where 30 or so patients attended an educational “summit” for people with a rare form of leukemia, chronic myelogenous leukemia or CML.While the people who came wanted to be informed and hear the latest from medical experts and an oncology social worker, they also wanted to meet others facing the same diagnosis. Particularly in rare conditions like this one, many patients have never met someone else with the diagnosis – and they very much want to make that connection. They want to hear the stories of others and see if they are like their own.

I found that to be true when Read more »

*This blog post was originally published at Andrew's Blog*

Building Programs For People Living With Serious Conditions

I can’t get the 1989 baseball movie Field of Dreams out of my head. That’s especially true right now as I can’t wait for the seventh game of the World Series. My son, Eitan, and I sat on the couch and watched the sixth game last night and it was probably the most exciting game I’ve ever seen. Plot twists galore. You can bet the audience for tonight’s game will be HUGE.

What’s so cool in thinking back about the movie is the famous line said to the baseball fanatic farmer: “If you build it they will come.” So he built a baseball field behind his house and the greats of baseball history came to play. I have never forgotten that line and have applied it to what we “build” at Patient Power – interview programs for people living with serious health concerns.

In the past few weeks, and continuing from now on, we have been focusing on two blood-related cancers: multiple myeloma and chronic myelogenous leukemia. While there are other educational resources out there, people living with these serious conditions always want more – as well they should. Fortunately, Read more »

*This blog post was originally published at Andrew's Blog*

Study Shows That Knowledge Of Imminent Death Is Beneficial For Cancer Patients

Providing information of imminent death to cancer patients does not increase pain or anxiety, but is associated with improved care and to increase the likelihood of fulfilling the principles of a good death, a Swedish study found.

Informed patients significantly more often had parenteral drugs prescribed as needed, died in his or her preferred place, and had an informed family who were offered bereavement support. There was no difference between informed and uninformed patients in control of pain, anxiety, nausea, and respiratory tract secretions, although there was a difference in management of confusion. Results appeared in the Journal of Clinical Oncology.

Since 2000, there has been an increasing focus on palliative care in Sweden, the study authors wrote. In 2001, the Swedish Government identified breakpoints for Read more »

*This blog post was originally published at ACP Hospitalist*

Why Hospitals And Physicians Should Get Serious About Patient-Centered Care

Health care professionals are a cynical lot.   We joke about the “fad or buzz word of the month”…usually some vague concept heralded by the powers on high.   Our job is to promote the idea…knowing full well that the “next big thing” is probably right around the corner.

Take “Patient-Centered”…it sure feels like a buzz word.   I suspect most hospital and physician executives, and their ad agency partners, would agree.  But this time things are very different.

Why Hospitals and Physicians Should Get Serious About Patient-Centered Care

Reason #1 – Patients Are Starting To Discover That Their Doctors & Hospitals Are Read more »

*This blog post was originally published at Mind The Gap*

Getting The Attention Of Patients In Younger Generations

Surely you’ve read before (perhaps even in our publication) about the challenges of Boomers and younger generations working together. You know the drill– these young’uns are good with computers but they’re all hung up on this idea that they should get to have a life. But Cam Marston, the opening speaker at MGMA put a new spin on the concept– addressing how generational differences can affect the way that you attract, and treat, patients.

A lot of it is pretty obvious. Millennials (those born between 1980 and 2000) like getting information by text, Boomers not so much. Younger patients do a lot more of their own internet research.

But some of the advice on how to act on these generations’ well-known differences was Read more »

*This blog post was originally published at ACP Internist*

Latest Interviews

Rock Stars Want To Franchise Specialty Teen Cancer Centers Across America

Rock superstars Roger Daltrey and Pete Townshend of The Who have a new cause sparking a franchise of teen-oriented cancer treatment centers across America. To kick off the launch of Teen Cancer America Daltrey amp Townshend were featured at a conference held at the National Press Club in Washington D.C….

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Paul Ryan’s Take On Healthcare Reform

Now that Mitt Romney has announced that Paul Ryan is his VP pick I thought it would be helpful to repost some video and transcripts from a healthcare reform conference that I organized in Paul Ryan was our keynote speaker at the National Press Club and I found him to…

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Latest Book Reviews

The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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Unaccountable: A Book About The Underbelly Of Hospital Care

I met Dr. Marty Makary over lunch at Founding Farmers restaurant in DC about three years ago. We had an animated conversation about hospital safety the potential contribution of checklists to reducing medical errors and his upcoming book about the need for more transparency in the healthcare system. Marty was…

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