November 24th, 2011 by AndrewSchorr in Opinion
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First, to our U.S. visitors – Happy Thanksgiving! To our friends around the world, we send all the best to you too!
This tends to be a time of reflection so I am heavy into that right now. First, as a 15-year-leukemia survivor, I am thankful every day I can live a full life. And, as the founder of Patient Power, I am thankful to you for visiting our site, listening to and watching our programs, and for telling us that, for the most part, we are making a positive difference in your life or that of a loved one as you seek better health. Quite frankly, I am thrilled when I read the comments you make in our surveys and your feedback propels all of us to do more. Read more »
*This blog post was originally published at Andrew's Blog*
November 12th, 2011 by AndrewSchorr in Opinion
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Remember when people in the waiting room at a doctor’s office were all reading magazines? It was quiet as each person waited for their name to be called. Even if you went to a specialist’s office, no one dared say “I’m here for _____. What brings you here to see Dr. ____?” No one “shared” even if, just maybe, they had a very similar health concern to the person next to them. Makes sense, health is a private matter, right? Well many people I know don’t feel that way. They feel the benefits of connecting with other patients far outweigh the risks.
The other day I was in Atlanta where 30 or so patients attended an educational “summit” for people with a rare form of leukemia, chronic myelogenous leukemia or CML.While the people who came wanted to be informed and hear the latest from medical experts and an oncology social worker, they also wanted to meet others facing the same diagnosis. Particularly in rare conditions like this one, many patients have never met someone else with the diagnosis – and they very much want to make that connection. They want to hear the stories of others and see if they are like their own.
I found that to be true when Read more »
*This blog post was originally published at Andrew's Blog*
November 5th, 2011 by AndrewSchorr in Opinion
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I can’t get the 1989 baseball movie Field of Dreams out of my head. That’s especially true right now as I can’t wait for the seventh game of the World Series. My son, Eitan, and I sat on the couch and watched the sixth game last night and it was probably the most exciting game I’ve ever seen. Plot twists galore. You can bet the audience for tonight’s game will be HUGE.
What’s so cool in thinking back about the movie is the famous line said to the baseball fanatic farmer: “If you build it they will come.” So he built a baseball field behind his house and the greats of baseball history came to play. I have never forgotten that line and have applied it to what we “build” at Patient Power – interview programs for people living with serious health concerns.
In the past few weeks, and continuing from now on, we have been focusing on two blood-related cancers: multiple myeloma and chronic myelogenous leukemia. While there are other educational resources out there, people living with these serious conditions always want more – as well they should. Fortunately, Read more »
*This blog post was originally published at Andrew's Blog*
October 31st, 2011 by RyanDuBosar in Research
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Providing information of imminent death to cancer patients does not increase pain or anxiety, but is associated with improved care and to increase the likelihood of fulfilling the principles of a good death, a Swedish study found.
Informed patients significantly more often had parenteral drugs prescribed as needed, died in his or her preferred place, and had an informed family who were offered bereavement support. There was no difference between informed and uninformed patients in control of pain, anxiety, nausea, and respiratory tract secretions, although there was a difference in management of confusion. Results appeared in the Journal of Clinical Oncology.
Since 2000, there has been an increasing focus on palliative care in Sweden, the study authors wrote. In 2001, the Swedish Government identified breakpoints for Read more »
*This blog post was originally published at ACP Hospitalist*
October 27th, 2011 by StevenWilkinsMPH in Opinion
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Health care professionals are a cynical lot. We joke about the “fad or buzz word of the month”…usually some vague concept heralded by the powers on high. Our job is to promote the idea…knowing full well that the “next big thing” is probably right around the corner.
Take “Patient-Centered”…it sure feels like a buzz word. I suspect most hospital and physician executives, and their ad agency partners, would agree. But this time things are very different.
Why Hospitals and Physicians Should Get Serious About Patient-Centered Care
Reason #1 – Patients Are Starting To Discover That Their Doctors & Hospitals Are Read more »
*This blog post was originally published at Mind The Gap*
