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The Peddling Of Genetic Tests

In a recent issue of the British Medical Journal (BMJ), journalist Ray Moynihan wrote: “Beware the fortune tellers peddling genetic tests.(Subscription required for full access.) Excerpts:

“For anyone concerned about the creeping medicalisation of life, the marketplace for genetic testing is surely one of the latest frontiers, where apparently harmless technology can help mutate healthy people into fearful patients, their personhood redefined by multiple genetic predispositions for disease and early death.

Again a tool that’s proved useful in the laboratory has escaped like a virus into the marketplace, incubated by entrepreneurs, lazy reporters, and the power of our collective dreams of technological salvation, this time in the form of personalised medicine to treat us according to our individual genetic profiles.

Evaluating genetic tests is a complex business, requiring assessment of how well the test measures what it claims to measure, how well the genetic variation predicts actual disease, how useful the results are in terms of treatment, and what the social and ethical issues might be. Clearly there’s potential for exaggerating the value of a genetic test, which is one reason Germany has imposed severe restrictions on direct-to-consumer testing. In the United States they’re talking of a new test registry on a government website, raising immediate concerns that it could lend legitimacy to unproved and potentially harmful products.
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*This blog post was originally published at Gary Schwitzer's HealthNewsReview Blog*

Industry Influence Is “An infection”: International Criticism Of Pfizer-Funded Journalism Workshops

Next week, the National Press Foundation offers an “all-expenses-paid, educational program on cancer issues” for journalists, with all expenses paid by Pfizer. I’ve written several times about my criticism of this approach.

The National Press Foundation has offered to let me speak at next week’s event or at a subsequent all-expenses-paid program for journalists on Alzheimer’s disease also underwritten by Pfizer.

I’m unable to attend either event because of prior commitments, but suggested to NPF that they ask Merrill Goozner to speak instead. He’s right in Washington, has written and lectured about conflicts of interest in healthcare, and was available. Goozner told me he has not been contacted. So, since I can’t attend and since critical voices probably won’t be represented at the first workshop, I have posted some video clips of what others might have said if given the opportunity. Read more »

*This blog post was originally published at Gary Schwitzer's HealthNewsReview Blog*

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