A couple of weeks ago, I was asked to speak as a patient about “consumers and cost information” while being videotaped for use in the annual meeting of the Aligning Forces for Quality initiative funded by the Robert Wood Johnson Foundation.
RWJF Video - This Costs How Much?
I admire the aims of this initiative – “to lift the overall quality of health care in targeted communities, reduce racial and ethnic disparities and provide models for national reform” – and I think it has taught us some valuable lessons about what it takes to make even slight course corrections in the trajectory of the huge aircraft carrier that is health care.
Plus, I have listened to hundreds of people talk about their experiences with the rising price of health care: who thinks about it when and why, what individuals do to cut back on the expense, where they have been successful and where not. I’ve heard lots of stories, most of them involving Read more »
*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*
Anytime you come across a healthcare article that implies that every patient wants access to this or that – i.e. their medical record, patient-centered care, etc. – you can safely assume that the claim is wrong. Why? Patients are not a monolithic group –- they don’t all share the same motivations, preferences, beliefs or experiences when it comes to their health.
But let’s face. If you are trying to push an agenda, just saying some people want this or that is not the same as implying that everyone wants it.
Take the issue of patient access to physician notes in their medical record. Robert Wood Johnson (RWJ) recently announced their OpenNotes study. The OpenNotes project will evaluate the impact on both patients and physicians of sharing, through online medical record portals, the comments and observations made by physicians after each patient encounter. Okay…so far, so good.
Things begin to fall apart, however, when RWJ cites “a recent study“ in the Journal of General Internal Medicine, as part of the basis for the OpenNotes research. According to RWJ, the study found that “most consumers want full access to their medical records.” Since when did six focus groups (64 people) constitute a representative sample, e.g. most people? Read more »
*This blog post was originally published at Mind The Gap*
It’s time for the 6th annual Games for Health conference. The conference, in partnership with the Robert Wood Johnson Foundation, provides a forum for experts in the fields of video games, healthcare, and science to come together and share the latest and greatest in health-related video game news and research.
From their promotional pamphlet:
Because digital games can actively engage and challenge people of all ages, they have the ability to help individuals manage chronic illnesses, support physical rehabilitation, pursue wellness goals and contribute to changes in health behaviors. Public health leaders, doctors and nurses, rehabilitation specialists, emergency first responders and other health professionals are also using games and game technologies to advance their skills and enhance how they deliver care and services. Games are even beginning to mine the wisdom of the crowds to forge critical new discoveries in biology and genomics.
The acceptance of games as a valuable health management and training method, the popular success of consoles like the Nintendo Wii, and the growth of smartphone game applications indicate that there is tremendous potential for continuing to move health and behavior change activities beyond clinical settings and the classroom and into consumers’ home, work, social and recreational spaces.
We’ll be reporting throughout the event (May 25-27). Stay tuned for info on the PS3 Move, a Wii laparoscopic trainer, and more.
*This blog post was originally published at Medgadget*
Readers interested in the relationships between poverty and healthcare will want to read several new postings on the Web.
One is an article about my Rhoades Lecture at the Wayne County Medical Society in Detroit, “Poverty and Healthcare in America.” It is posted on the World Socialist Web Site.
Second is by James Marks, MD, MPH, Vice President of the Robert Wood Johnson Foundation, entitled “The Poor Feel Poorly.” It is posted on the Huffington Post site.
Third is “Health and Healthcare in America’s Poorest City,” a tragic and dramatic portrayal of America’s failures to its own in Detroit, also on the World Socialist Web Site.
Finally, here is a link to a collection of papers on social inequalities in health by the McArthur Network on SES and Health, published by the New York Academy of Medicine under the title, “Biology of Disadvantage.”
*This blog post was originally published at PHYSICIANS and HEALTH CARE REFORM Commentaries and Controversies*