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What Not To Say To A Parent Of A Kid With Diabetes

I didn’t make this video, but the fact that it quotes questions I’ve heard people ask the parents of children with diabetes time and time again makes me smirk. It’s a little bit sassy. And my goodness, did I laugh when I first watched it. The second time I watched it, I paused it to write down my favorite line:

“There are only two things my daughter cannot eat:  Poison, and cookies…made with poison.”

(Note:  If someone can hook me up with this moss that supposedly cures all things that ail ya, let me know. I’d love some in time for the holidays.)

This video was born on Joanne’s Death of a Pancreas site. Thanks for the laughs, Joanne!

*This blog post was originally published at Six Until Me.*

Diabetes Camp: How You Can Help

I loved diabetes camp. Actually, that should be in present tense because I continue to love diabetes camp, even though I’m not a camper anymore. Attending Clara Barton Camp for those five summers changed the way I looked at life with diabetes, and my health has always been better for it.

But I’ve talked about camp before. I’d love to play a role in sending other kids to diabetes camp. And thankfully, we as a community now have that chance.

The Diabetes Education and Camping Association (DECA) is in the running to win one of the Pepsi Refresh Project grants. If they earn one, they’ll use their winnings to send kids to diabetes camps and will also arm them with digital filmmaking skills so that the campers can chronicle their experiences with type 1 diabetes. As a diabetes camp alum, a patient advocate, and the wife of a filmmaker, I think this is a fantastic idea. Read more »

*This blog post was originally published at Six Until Me.*

Having Diabetes And Being “Real-People Sick”

Since the beginning of November, I’ve been dealing with a random few weeks of feeling “real-people sick” (RPS). Like I wrote about last week, diabetes is something I’m used to and can deal with pretty well, but the common cold knocks me right on my end. I deal with colds like a guy. I hate being RPS:

Real People Sick: The differentiation between blood sugar issues and the common cold. Phrase slips out most often when the diabetic admits to not feeling well and must specify that it is not blood sugar related.

This month’s Animas “Life, Uninterrupted” vlog is about being “sick” on top of having diabetes, and about how cracked-out squirrels and I sometimes share the same vocal patterns. Unfortunately, there’s another cameo by Abby (the cat) because she’s usually lounging, all lazy, while I record these things. (That cat needs to get on the ellipmachine or something — chubby little chomper.)

Enjoy, and thanks for not judging me for the squeaky voice and the whining!

*This blog post was originally published at Six Until Me.*

Feeling Pretty Thankful

It’s Thanksgiving here in the States, and I’m feeling pretty thankful. While the day is reserved for turning hand tracings into turkeys, it’s also a good day to highlight what I’m thankful for this year:

I’m thankful that we have a backyard that the cats can go [potty] in, because I was tired of cleaning that litterbox. (And I’m also secretly glad that our neighbors have a ridiculous cat that comes over and starts trouble with ours, because when they pile into the bushes out back and cause the shrubbery to vibrate with their Andy Capp-style battles, it cracks me right up.)

I’m thankful for our family and friends, who have helped Chris and I adjust to our new lives as “parents” and who make “home” a place that matters. We’re so glad to be sharing this chapter of our lives with the people and in the places we love the most.

I’m thankful for having good enough health to take it for granted, and to actually have the luxury of feeling frustrated when I’m “sick” because it’s such a foreign concept.

I’m thankful for the wonderful work opportunities that have come up in the last few years, specifically for the companies and organizations that have embraced the voices of patient advocacy and who have decided to become part of the conversation.

I’m thankful I have an insulin pump and a continuous glucose monitor that can help me make sense of the holiday meals. Also known as: “Pie? Yes, please.” Read more »

*This blog post was originally published at Six Until Me.*

Meet Marcel, The Diabetic Shell

Clara Barton Camp (CBC) is awesome — this is an indisputable fact. I talk about CBC all the time when I’m at conferences, because there is something so unique and incredibly supportive about knowing that your fellow campers are also insulin-dependent and aren’t afraid to show it.

Part of what makes CBC so cool is that it makes you feel like having diabetes is…sort of cool. Almost everyone at camp has it, so if your pancreas happens to work, it makes you the odd one out instead of part of the WYOI (wear your own insulin) crowd. What’s more empowering than taking an isolating chronic illness and making it the common — and intrinsically cool — thread? 

Which is why this video — a diabetes take on the Marcel the Shell with Shoes On — is so brilliant. It takes the Marcel the Shell concept and turns it on its diabetes head. And if you’re “in the know” with diabetes, it will make you laugh. If you listen closely, you’ll hear some of my favorite diabetes lines of all time. (Including, but not limited to: “One time I licked a glucose tab and went into DKA.”)

It takes some serious (cotton?) balls to make this video. I love it. This video was created, voiced, and edited by the talented CBC team of Abby Bayer (who guest posted here), Savannah Johnson (her post is here), Allie D, and Alissa Carberry (I think it’s time for Alissa and Allie to post, since I have nothing to link to for them).  

What else can I say, other than this video had me in tears from laughing last night. Clara would be proud!

*This blog post was originally published at Six Until Me.*

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