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A Day In The Life Of Type 1 Diabetes: Glucose Control Burn Out

Diabetes?  Isn't any of this unicorn bullshit.Two weeks ago, I was in the emergency room for some severe stomach pain, down on the lower right hand side of my abdomen.  After consulting with Dr. Google (bastard), I realized that it could be appendicitis.  Knowing I was heading to Toronto the next afternoon, I didn’t want to take any chances with this pain.  So I headed off to the ER to check things out.

Looooong story made Twitter-esque short, I didn’t have appendicitis.  I just had some rogue stomach pain.  However, while I was at the hospital, I asked to have my A1C run.  I figured I was there, they were already drawing blood, so what’s one more vial?

“Can you guys grab an A1C while you’re at it?” I asked.

“Is your diabetes under control?”  asked the doctor.

“Um … define control?  I wear a pump, I wear a CGM, and I’m very aware of my disease.  But I’ve been having a hard time juggling things lately, on just about every level, so I’m pretty sure my A1C is crap.”

The doctor shot me a very rude, very judgmental look.  I shot one back at him.

“I’m asking you to run an A1C because I’m trying to regain control.  I don’t have this nailed down and perfected, but I’m trying.  Is that the wrong thing, in your opinion?” Read more »

*This blog post was originally published at Six Until Me.*

Why This Diabetic Isn’t Concerned About Her Insulin Pump Being Hacked

Jay Radcliffe is a fellow type 1 diabetic, and I remember reading his diabetes blog way back in the day, when I first started blogging.  We read and commented on each other’s posts, and we were both part of the blogosphere when the DOC first started to grow.  I knew he was married, had children, and did the day-to-day diabetes stuff that I did.

Which is why when I read the mainstream media’s take on his pump-hacking research (this article, Insulin Pumps Vulnerable to Hacking, for example), I reached out to him immediately.  “Can I just tell you that my mother sent me this article about your research?  Do you have time to talk?”

Jay was out in Las Vegas this morning, attending the Black Hat security conference, but he and I had a chance to hash it out over the phone.

“I know you!  And I know you as a diabetic, not as this guy who hacks insulin pumps and has a billion articles floating around about it on the web right now.  I have a few questions.  Starting with, why did you decide to hack into your own insulin pump?”
 Read more »

*This blog post was originally published at Six Until Me.*

Growing Up With Type 1 Diabetes

In the years I’ve attended CWD’s Friends for Life conference, I always came away with this appreciation for what the conference provides for kids with diabetes, and their parents.  Kids – a whole bunch of them – running amuck and clad in green bracelets with pump tubing flapping from underneath their t-shirts … it’s a place where these families hopefully feel normal, and safe, and understood.

But I’m not a kid with diabetes.  I’m an adult.  (I checked, and it’s true: adult.)  I always felt welcomed at past FFL conferences, but people constantly checked for the kid at my side, because the “child with diabetes” surely couldn’t be me.  (And then there was that time that the registration lady thought Sara(aah) was my child with diabetes, wherein my head exploded.)

Growing up with diabetes isn’t hard.  It isn’t easy.  I can’t assign adjectives to it because it’s all I’ve ever known, so growing up with diabetes is exactly synonymous to “just plain growing up.”  My friends didn’t have to take injections or chase NPH peaks, but we were in the same classes and rode the same bus and went on the same field trips, so we were “the same.”  The difference, at that point in my life, was Read more »

*This blog post was originally published at Six Until Me.*

Being A Diabetic Parent Isn’t Easy

Lead by Korey Hood and Stefan Rubin, the Parenting with Type 1 Diabetes session at Friends for Life was aiming to touch upon the different challenges of being a parent with type 1 diabetes, instead of the concentration on parenting a child with type 1 diabetes that Children With Diabetes was once known for.  This was my first year attending this session, and I sat between two of my best friends in the diabetes community – Scott and George.

“So thanks for coming, you guys.  We’re here to talk about parenting with type 1 diabetes,” said Korey.

At this point, people started doing introductions.  “Hi, I’m So-and-So and I was diagnosed with diabetes in 1998.”  or “I’ve been diabetic for 16 years and I have three children.”  Only introductions.  That’s it.

So why was I already crying? Read more »

*This blog post was originally published at Six Until Me.*

When Diabetes Requires Mad Scientist Experimentation To Get Blood Sugars In Target Range

Hoping I hit a balance as lovely and even as depicted in this here clip art from 1994.I do not enjoy basal testing.  Even though I sometimes go six hour clips without having a snack (thanks, Birdy and your busy ways), something about knowing I can’t eat or exercise makes me want to do a 5K while simultaneously chomping down on some soft serve.

But when I noticed that I was going to bed at a completely normal blood sugar, but waking up in the 180 – 220 mg/dl range for three days in a row, I knew I needed to do some basal tweaking.

Making adjustments to my overnight basal rates always skeeves me out.  I’m a very deep sleeper (as evidenced by the fact that Siah prowling around on the bed all night doesn’t wake me in the slightest, but makes Chris say “We’re sleeping with the door SHUT tonight,” in the morning), and I have a very healthy fear of overnight low blood sugars.  My symptoms of a low on the overnights used to be this body-drenching sweat, but since the birth of my daughter, that symptom has all but disappeared.  Now, I don’t have any symptoms at all.  Blood sugars of 60, 50, and lower don’t even register until I prick my finger and go, “Oh.  I guess I’m low?” Read more »

*This blog post was originally published at Six Until Me.*

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