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Live Show: March 4, 10:30am EST: Twitter Unites Physicians From Spain And The USA

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Will Twitter wonders never cease? I was recently contacted by one of my Twitter followers from Spain – Alain Ochoa Torres, a journalist with Diario Medico (Spain’s leading publication for healthcare professionals).  Alain has spearheaded a creative new social media strategy: the Twitterview. I am the eighth interviewee in a series featured on Twitter. Tomorrow (March 4th) at 10:30am EST I’ll be typing back and forth – live – with Spanish physicians who have questions about American medicine and the media. You can tune in by following me “drval” on Twitter, or by searching for this word on Twitter: #dm8 (that stands for Diario Medico, interview #8).

For those of you who don’t know about Twitter, it’s a micro-blogging platform that is limited to 140 characters per post. That means I’ll have to master the “sound bite” in my interview responses! To see how I do… you can watch the interview live or search for it later on Twitter by entering #dm8 in the search box at the bottom of the Twitter home page.

This is a really innovative use of Twitter technology – and one that brings together physicians from both sides of the Atlantic. I’m really honored and excited to be part of this social media event and hope to do more of them.

And the good news is that this interview will be in English (my Spanish vocabulary is limited to things like “where is the pain?” and “turn your head and cough” – hardly substantial enough for a Twitterview.)

Hope you’ll join the experiment with me.

Why Are iPods Cooler Than Glucose Monitors?

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dbmine-design-challenge-2009-small-iconThat’s the $10,000 question. My friend and fellow health blogger, Amy Tenderich is hosting a design contest to encourage “coolness” to flow the way of diabetes-related technology. Now that’s a good cause! Here’s the 411 from Amy:

About 21 million Americans live with diabetes, yet the devices we rely on generally don’t hold a candle to the sleek design of consumer electronics (think iPod)… So patients are going “grassroots” to improve the design of tools for treating diabetes:

On Monday morning, we’ll be announcing opening of the 2009 DiabetesMine Design Challenge, a San Francisco blog-based competition calling for innovative design concepts (devices or web applications) that will improve life with diabetes.

This year, the contest is sponsored by the California HealthCare Foundation (CHCF), with a Grand Prize of $10,000.  It’s also supported by global innovation firm IDEO and by Medgadget.com, the Internet journal of emerging medical technologies.

The competition is open to ANYONE with a good idea: patients, parents, startup companies, design & medical students, developers, engineers, etc.

The contest is hosted at www.diabetesmine.com/designcontest

Biotech Humanitarian $10,000 Award: Nominations Please

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The Biotechnology Industry Organization (BIO) announced on February 12th the creation of the Biotech Humanitarian Award, to be given to an individual in the field of biotechnology who has enhanced the human experience by harnessing the power of biotechnology to heal, feed or fuel the planet.

The Biotech Humanitarian Award will recognize individuals behind tangible improvements in the area of therapeutics, food and agriculture or industrial and environmental applications. The inaugural award and a prize of $10,000 will be presented in May at the annual BIO International Convention, and the five finalists will be recognized as well. The 2009 BIO International Convention runs May 18-21 in Atlanta, Georgia.

Nominations are open to all individuals and can be accessed via iambiotech.org. Nominees must have achieved one of the following: produced new applications, significantly advanced biotech applications or made available tangible, applicable results in the food and agriculture, industrial and environmental, or therapeutic sectors.

Qualified nominees for the Biotech Humanitarian Award will be professionals in the biotechnology field including scientists, researchers, academics, entrepreneurs, financiers, philanthropists, educators, advocates and others who have added value to society through their pursuit of biotechnology processes.

How The Health Blogosphere Was Scammed

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In a press release dated January 28, 2009, the HealthCentral Network announced the acquisition of a company called Wellsphere from its young CEO, Ron Gutman. Many of my fellow medical bloggers are familiar with Wellsphere as they’ve received countless email form letters from Wellsphere’s CMIO, Dr. Geoffrey Rutledge. The form letters are flattering, and suggest that the company would like to feature the blogger’s writing on their platform.

But what happens next is disturbing – to become a member of Wellsphere, bloggers provide access to their blog’s RSS feed. Hidden in the fine print is the blogger’s consent for Wellsphere to publish the entire feed (in other words, all of the blogger’s written work) and that once it’s published on their site, they own the intellectual property rights to it.

Astonishingly Wellsphere convinced some 1700 bloggers to join their network, and have now sold their site (which is comprised almost entirely of blog post content) to HealthCentral Network for an undisclosed amount, likely in the millions.

How much did the bloggers get for their writing? As far as I know, zero dollars.

In the reference section below you will see copies of emails sent by Dr. Rutledge and excerpts from the website’s Terms of Use document.

Is this the biggest scam ever pulled on health bloggers? You decide. If you have any additional information, feel free to post it in the comments section below.

Addendum: HealthCentral Network CEO tells Wall Street Journal “most bloggers are happy about Wellsphere.” If you disagree, send protest Tweet #wellsphere or leave comment below.

References:

Here is the introductory form email sent out by Dr. Rutledge:

Hi Dr. Jones,

I was on a search for the best medical blogs, when I found you at X.  I think your blog is great. I’d like to invite you to participate in the network of medical expert bloggers at Wellsphere, but perhaps I should explain a bit about myself and about Wellsphere as background.

My name is Dr. Geoff Rutledge, and, like you, I understand the power of the Internet to help people. I’m a physician (board certified in IM and EM) who previously practiced, taught, and carried out research at Stanford and Harvard medical schools, before I built and launched the first consumer ehealth service that became WebMD.com.

I now work with Wellsphere, which is a next-generation online platform that helps people achieve their health and healthy living goals – it is a major advance in the way people find and share information and services. Our platform connects millions of users with the valuable insights and knowledge from health leaders and medical experts like you — take a look at how the platform works at www.wellsphere.com. Stanford University was so impressed that they deployed our service for the entire campus (see stanford.wellsphere.com). We sell our service to employers and health plans – you won’t see today any ads or commercial services on our free public site.

I offer you the opportunity to be a featured medical expert blogger for a new  Wellsphere community. Members and visitors will see your postings highlighted, featured, and clearly marked as authored by a true medical expert.

When you join, we will feature you on our medical experts page (here is the preliminary design for this page: http://www.wellsphere.com/medical-experts.htm), and I will highlight your participation and your postings in my personal blog, which is featured prominently on the homepage of wellsphere.com (Dr.Geoff’s MedBlog, http://medblog.wellsphere.com/).

We will republish the postings you’ve already written for you (through your RSS feed), and feature them not only on the community pages of the site, but also within a new dynamic magazine-like Wellsphere360 section, where we give users a comprehensive view of medical expert information, plus news, videos, local resources, and member postings on topics you write about. You can see a sample of a Wellsphere360 special section at http://www.wellsphere.com/Wellsphere360/diabetes-type-2.htm

Also, I will select the best medical bloggers to feature on our homepage at www.wellsphere.com.

Your posts will link back to your blog, so you will benefit from Wellsphere’s high ranking and large readership interested in your topic, which will give you more traffic, additional relevant audience, and a higher ranking for your blog. Wellsphere has well over a million visitors per month, and is growing rapidly.

If you would like us to feature you, just send me an email to Dr.Rutledge@wellsphere.com.

Good health,

Geoff

Geoffrey W. Rutledge MD, PhD
Dr.Rutledge@wellsphere.com
http://www.wellsphere.com


Here is a follow up email after I declined to join the network:

Hi Dr. Val,

We haven’t met, but I’ve been following your journey. We sent you an invitation to republish your blog from RevolutionHealth on Wellsphere, though I understood why that was somewhat problematic. I’m looking forward to seeing your new site at http://drvalblog.com/

Have you followed the advances that Wellsphere has made in creating a consumer-focused site that makes it easy to find both medical expert content and knowledge, and patient/community support?

If you would be interested in reaching the Wellsphere audience (now significantly exceeding that of RevolutionHealth, with over 2 million visitors per month), I would be pleased to extend the offer to republish your blog postings on Wellsphere.

We also could list you as a Notable Wellsite on topic pages of your interest (for which we ask only that you either list us on your blogroll, or take advantage of our free Health Knowledge Finder widget, or post an “I’m featured on Wellsphere” badge on your site.)

Cheers, Geoff

Here is a follow up email sent to a blogger who declined to join the network:

Hi XXX,
I just wanted to follow up on the invitation I sent you to be a featured blogger on Wellsphere.com. I was impressed with your blog at XXX, and invited you to be a featured blogger in the new General Medicine community.  We can also promote your blog in our new dynamic, magazine-like WellPages (with no extra work for you)! If you’re interested in being featured and promoting your blog to the larger Wellsphere audience, please drop me an email!
Good Health!
Geoff

Here is more information on how this works:

We republish your articles on our site, and include links back to your site. We also publish your profile with a link back to your site, and we feature you on special sections on topics that you write on, and in your topic-based community.

We will set up your profile if you don’t already have one, so you don’t have to do anything but give us permission to republish your content on our site. We don’t require a particular schedule for posting, though we have invited you to become a Wellsphere health blogger based in part on your history of posting on your blog.

Our growing network of bloggers (now over 1700) have told us they value what Wellsphere is trying to accomplish – helping people of all walks of life and across the spectrum of health to achieve healthier lives. They also appreciate the opportunity to reach the larger (and also rapidly growing!) Wellsphere audience, and to benefit from links in each posting that drive traffic back to their blogs.

We would be happy to include you in our network as we expand into health topics.
——
Geoffrey W. Rutledge MD, PhD
Chief Medical Information Officer
Wellsphere, Inc.
http://www.wellsphere.com

Here is an email from Wellsphere mistakenly sent to my webmaster (he’s not a blogger):

Hi john,

We are excited to recognize you in our new YES, WE CARE! Campaign that honors everyday heroes, like you, who put themselves on the front lines in the quest for a healthier, happier world by spending their time and putting their hearts and souls into helping others in need. We’re particularly excited to have this chance to honor you, for dedicating your time and writing to help people improve their health and well-being. We’ve nominated YOU as one of our Everyday Heroes!

As part of the YES, WE CARE! Campaign, we are creating a special video to highlight some of the amazing stories we’ve heard that demonstrate that caring for others is alive and well today all over the world. We would love to include YOUR story in the video! If you would like to send us a short video (cell phone or webcams are just fine!) about what moved you to start your blog, or to share a moving story of caring that you were involved in or heard about, we’d be happy to include it in the video. You can also interview someone you think is an Everyday Hero, or tell their story. Please keep the length of your video between 20 seconds and 2 minutes. The video can be very casual and definitely does NOT need to be professional or polished – just be yourself!

Please send us the video ASAP, and no later than Sunday, October 19th.

We can’t wait to see your videos and are looking forward to recognizing you and other Everyday Heroes you know for your extraordinary contribution to the world!

To submit your video, send us your video as an attachment via email to wecare@wellsphere.com. If you would like to send a video directly from your cell phone, just email me at Dr.Rutledge@wellsphere.com and I’ll send you the cell phone number you can send a video-text message to.

Good health!
Geoff

Geoffrey Rutledge MD, PhD
Chief Medical Information Officer
Wellsphere
Dr.Rutledge@wellsphere.com

Here is an email from Wellsphere about their plans for a health blog conference:

Hi ,

This week, I’m excited to share the warm words we’ve heard about all of you and the early feedback we’ve heard about the Yes, We Care Campaign, and announce the world’s first Health Blogger Conference!  We can’t wait to meet you in person…

Yes We Care!
The Yes We Care Campaign launched last week, and we’re thrilled to be able to honor you and your colleagues on the Map of Caring. The response has once again been quite dramatic. Many of you have already posted your Everyday Hero badges and the heartwarming Yes We Care! Video on your blogs. Here are a few of the comments we’ve heard about the campaign:

“I am thrilled to participate in your “YES, WE  CARE !” Campaign and am most humbled in your nomination.  What an amazing idea! Our blog continues with the hope of “paying it forward” and helping others, just as you are doing with Wellsphere. .. Thanks for doing such an amazing job!”  – http://www.ranaesheart.com/

“Thank you so much for recognizing my site and the effort that went into creating it!!! It’s amazing people like yourselves that keep me going and make a contribution to the greater good of all !! thank you again my friends !!!” -http://liftheavy.wordpress.com/

“Here is the video from Wellsphere! It is very cool it’s a 10 minute video with people from all over trying to help heal the world! Awesome video guys!”  http://thelifeofthomascslater.blogspot.com/
“I want to take this opportunity to thank Wellsphere for calling me a “Everyday Hero” for the lives I have touched. I want to say thank you for giving me that opportunity to do so.”  http://ucanhope2.blogspot.com

Many of you commented that the Yes We Care video let you see and connect with other members of the Health Bloggers Network for the first time, and asked if we would consider organizing an event for everyone to meet and connect with each other.  WHAT A GREAT IDEA!

I am very pleased to announce the world’s first Health Blogger Conference (“ HBC -09”)! This conference will be the largest gathering of health writers in history!  The Conference will be by invitation only, and as a member of the Health Blogger Network, you will automatically be guaranteed an invitation. This will be a great place for you to meet fellow health bloggers, share best practices, discuss sources of ideas, learn how to promote your blog, and meet some of the most prominent figures in the world of health. There will be a series of organized information sessions and seminars, as well as fun events and ample opportunities for you to meet and mingle in a relaxed atmosphere.   We will announce the location soon – somewhere you will enjoy a healthy, rejuvenating, experience.

If you’d like to get involved in the Conference, here are some of the opportunities available to you:
– become an organizer                                         
– become a volunteer
– give a talk or seminar
– organize a panel presentation
– suggest a topic for a talk or a panel
– suggest a speaker to invite to give a presentation

Here Are Excerpts From Wellsphere’s Terms of Service Document:

Ownership
…All Website Materials, including any intellectual property rights in such Website Materials, are the property of Wellsphere, its affiliates, licensors, or the designated owners, and are protected by applicable intellectual property laws. You should assume that everything you see on this Website is copyrighted unless otherwise noted, and may not be used without our written permission except as provided in these Terms…

Content You Submit to or Post on the Website
…You agree that any and all comments, information, photos, videos, feedback and ideas that you communicate to Wellsphere or submit or post to the Website or give Wellsphere permission to post to the Website (“User Materials”) will be deemed, at the time of communication to Wellsphere or submission or posting to the Website, to be the property of Wellsphere, and Wellsphere shall be entitled to full rights of ownership, including without limitation, the unrestricted right to use or disclose such User Materials in any form, medium or technology now known or later developed, and for any purpose, commercial or otherwise, without compensation to you. In the event that you have any rights in the User Materials that cannot be assigned or waived you hereby grant to Wellsphere a royalty-free, paid-up, exclusive, worldwide, irrevocable, perpetual license to (i) use, make, sell, offer to sell, have made, and further sublicense any such User Materials, and (ii) reproduce, distribute, create derivative works of, publicly perform and publicly display the User Materials in any medium or format, whether now known or later developed.

When you post your own copyrightable content on the Website or give Wellsphere permission to post your copyrightable content on the Website, you retain ownership of any copyright you claim to your submitted content. However, by posting your content or giving Wellsphere permission to post your content you automatically grant Wellsphere a royalty-free, paid-up, non-exclusive, worldwide, irrevocable, perpetual license to (i) use, make, sell, offer to sell, have made, and further sublicense any such User Materials, and (ii) reproduce, distribute, create derivative works of, publicly perform and publicly display the User Materials in any medium or format, whether now known or later developed…

Health Care Policy Summit Brings Together Unlikely Allies

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Better Health’s policy writer, Gwen Mayes, caught wind of an interesting new conference being held tomorrow in Miami. She interviewed Ken Thorpe, Ph.D., one of the conference organizers, to get the scoop. You may listen to a podcast of their discussion or read the highlights below. I may get the chance to interview Billy Tauzin and Donna Shalala later on this week to get their take on healthcare reform initiatives likely to advance in 2009. Stay tuned…

[Audio:http://blog.getbetterhealth.com/wp-content/uploads/2009/01/gwenken2127.mp3]


Mayes:  Tell us about the upcoming conference in Miami on January 28th called “America’s Agenda: Health Care Policy Summit Conversation.”

Thorpe:  The conference will start a conversation on the different elements of health care reform such as making health care more affordable and less expensive, finding ways to improve the quality of care and ways to expand coverage to the uninsured.  The conference is unique in that we’ve brought together a wide range of participants including government, labor, and industry for the discussion, many of whom have been combatants over this issue in the past.

Mayes:  Will there be other meetings?

Thorpe:  This is the first of several.  There will others in other parts of country over next several months.  President Obama and HHS Secretary Designee Tom Daschle have talked about engaging the public in the discussion this time around.  So part of this is an educational mission and part of it is to reach consensus among different groups that have not always agreed in the past.

Mayes:  What encourages you that these groups will be more likely to reach consensus now when they haven’t in the past?

Thorpe:  The main difference is that the cost of health care has gotten to the point that many businesses and most workers are finding it unaffordable.  In the past, most businesses felt that, left to their own devices, they could do a better job of controlling health costs by focusing on innovated approaches internally.  What we’ve found, despite our best efforts, working individually we haven’t done anything to control the growth of health care spending.    The problems go beyond the reach of any individual business or payer and we need to work collectively.

Mayes: How will health care reform remain a priority in this economy?

Thorpe:  The two go hand in hand.  As part of our ability to improve the economy we’re going we have to find a way to get health care costs down.  Spiraling costs are a major impediment to doing business and hiring workers.  To the extent we can find new ways to afford health care it will be good for business and workers.

Mayes:  Health information technology is also an important aspect.  What are the common stumbling blocks to moving forward?

Thorpe:  There are three issues we have to deal with.  First, we have to have a common set of standards for how the information flows between physicians and physicians, and with payers and hospitals.  What we call interoperability standards.   Second, we have to safeguard the information.  Finally, cost is the biggest challenge because most small physician practices of 3 or 4 physicians don’t have electronic record systems in place.  To put in a state-of-the-art system can cost $40,000 per physician and most cannot afford this expense.  I think the stimulus bill will provide funds to help with these costs.

Mayes:  There’s always growing interest in the patient’s role.  How will this be addressed?

Thorpe:  We have to find a better way to engage patients in doing better job of reducing weight, improving diet and those with chronic disease to follow their care plan they worked out with their physician.  We also want to make it more cost effective for patients to comply with the plan.  Patients who comply with health plans will have better outcomes at lower costs. 

Mayes:  Who’s on the agenda in Miami?

Thorpe:  It’s at the University of Miami so it will be hosted by President Donna Shalala who was Secretary of HHS under the Clinton administration so she is well versed on health policy.  Also attending is the head of PhRMA, Billy Tauzin, a former Congressman and former majority leader of the House, Dick Gephart.  There will be some lay people as well for a nice cross section of consumers, labor, providers, business and others.

Mayes:  How can people learn more about American’s Agenda and the conference?

Thorpe:  The executive director of American’s Agenda is Mark Blum.  He can be reached at 202-262-0700 or at America’s Agenda.org.

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