Better Health: Smart Health Commentary Better Health (TM): smart health commentary

Latest Posts

Hostility Towards Scientists And Jenny McCarthy’s Latest Video

I’ve been fairly quiet about Jenny McCarthy’s campaign against childhood vaccinations, partly because Dr. David Gorski has covered the issue so thoroughly already, and partly because of my “do not engage” policy relating to the deeply irrational (i.e. there’s no winning an argument with “crazy.”) But this week I was filled with a renewed sense of urgency regarding the anti-vaccinationist movement for two reasons: 1) I received a personal email from a woman who is being treated with hostility by her peers for her pro-science views on vaccines and 2) a friend forwarded me a video of Jenny McCarthy speaking directly to moms, instructing them to avoid vaccinating their kids or giving them milk or wheat because of their supposed marijuana-like addictive properties.

Anti-Vaccination Views Are A Status Symbol?

I was surprised to discover that some pro-science moms are being mocked by peers who are uninterested in evidence, choosing to believe any dubious source of health information that questions the “medical establishment.” This concerned mom writes:

I am the mother of two young children, and I live in the trenches of the anti-vax woo.  In my circle of about 14 mothers, my anecdotal analysis is that the rate of complete vaccination hovers around 60%.  The mothers in this group are all very well educated, middle-class or affluent, predominantly stay-home mothers. One problem is what they consider reliable sources of information.  They rely on anecdotes and dismiss scientific evidence in part because they are very anti-medical establishment.  The group is self-validating and many shared values (and myths) increase in intensity over time.

Many of the mothers practice “Natural Family Living” which has some appealing aspects, but also harbors elements of a cult.  In this environment, anti-vaccination becomes a very powerful status symbol… I have lost friendships and been partially ousted from this circle because of my views.

This note struck a chord with me, since I experienced similar hostility in the past for voicing my concern about pseudoscience and misleading consumer health information. I was accused of being “paternalistic, narrow-minded, a dinosaur – part of a dying breed, a racist against complementary and alternative medicine, and a Bible school teacher, preaching evidence-based medicine,” insulted for my desire to be accurate about what was known and not known about treatment options, and my expertise, training, and academic credentials were called into question publicly on many occasions. I endured all of this primarily at the hands of someone who supposedly believed in “natural healing” and the “art of kindness” as an integral part of patient care.

I am troubled by the mounting antagonism towards those of us who’d like to use critical thinking and scientific reasoning to learn what we can about medicine and our health. I’m not sure what to do about it except to encourage one another to stand strong for science and reason – to expect all manner of attacks and insults, and to be firmly committed to the objective quest for truth. It shall set us free.

Jenny McCarthy – Inaccurate, Unhelpful And Dangerous Advice

Although I find Jenny McCarthy’s advice and opinions painful to watch, I committed myself to viewing her recent video at my friend’s request. In order to spare you similar discomfort, let me simply summarize what she said so you can get a high level overview of the sort of bizarre and misinformed claims she promotes (feel free to check out the video for yourself).

“Autism is not primarily a genetic disorder, but caused by vaccine-related toxins (including mercury, aluminum, ether, anti-freeze ,and human aborted fetal tissue) and pesticides.”

“Kids get ‘stoned’ by wheat and dairy toxins. Giving them wheat or dairy proteins is like giving children marijuana.”

  • There is currently no evidence that any diet improves or worsens the symptoms of autism spectrum disorders.  In fact, whole grains and dairy products are an important part of a healthy diet for most children.

“Food allergies are like Iran and Iraq. Glial cells (they’re like chef cell) provide food to the neuron kings. Glial cells can turn into Rambo to fight Iran and Iraq. If a child is allergic to everything, the Rambo cells stop feeding the neurons and the neurons starve. That causes the symptoms of autism.”

  • I don’t know what to say about this strange analogy – clearly no science-based information here.

“To treat autism, you need to give your child supplements to fight off the yeast in their bodies. I recommend Super Nathera, Culturelle, Cod Liver Oil, Caprylic Acid, CoQ10, Calcium, Vitamin C, Selenium, Zinc, Vitamin B12, B6, and Magnesium.”

  • There is no evidence of efficacy for any of these supplements in the treatment of autism.

“You need to consult with a DAN! Practitioner.”

  • DAN! Practitioners recommend chelation therapy for the treatment of autism. There is no evidence that chelation therapy has any benefit for children with autism, and in fact, can be fatal.

“Whatever you think becomes your reality. Imagine your child going to his/her prom and he’ll be cured.”

I think it’s pretty clear that Jenny McCarthy’s recommendations range from ineffective (imaginary healing) to harmful (malnutrition related to absent dairy and wheat in the diet, excessive levels of vitamins) to deadly (chelation therapy with DAN! Practitioners). Will mothers watching her new show on Oprah fall for her pseudoscience and poor advice?

I was pleased to see this open letter to Oprah from one concerned mom. Here’s an excerpt:

To me, it is clear that a significant number of people look up to you, and trust your advice and judgment. That is why it is such a huge mistake for you to endorse Jenny McCarthy with her own show on your network.
Surely you must realize that McCarthy is neither a medical professional nor a scientist. And yet she acts as a spokesperson for the anti-vaccination movement, a movement that directly impacts people’s health. Claims that vaccines are unsafe and cause autism have been refuted time after time, but their allure persists in part because of high-profile champions for ignorance like McCarthy. In fact, ten of the thirteen authors of the paper that sparked the modern anti-vaccination movement retracted the explosive conclusions they made due to insufficient evidence. Furthermore, it is now clear that the study’s main author, Andrew Wakefield, falsified data to support these shaky conclusions.

We have come close to eradicating life-threatening and crippling illnesses because of vaccines, but are now struggling to prevent outbreaks because of parents’ philosophical beliefs that vaccines are harmful. Realize this: when someone chooses not to vaccinate their child, they aren’t just putting their own child at risk, they are putting everyone else around them at risk. Diseases with vaccines should normally be of little concern even to unprotected individuals due to herd immunity – with the majority of the population immune, unprotected individuals are less likely to come into contact with the pathogen. Unfortunately, herd immunity disintegrates as fewer people are vaccinated, putting everyone who hasn’t yet been vaccinated at greater risk for infection. Now, the rates of infection by diseases for which we have safe and effective vaccines are climbing, thanks to anti-vaccination activists like Jenny McCarthy.

You reach millions of people everyday and your words and endorsements carry an incredible amount of weight. If you say to buy a certain book, people will buy it. If you do a segment on a certain charity, people will contribute. And if you say that what Jenny McCarthy is saying has merit, people will believe you…

Conclusion

A certain segment of society appears to be emotionally invested in medical beliefs that are not based on science, but rather anecdotes, conspiracy theories, and magical thinking. Those who recommend a more objective method of inquiry may be subject to ridicule and hostility by that segment. Nonetheless, it is important (for public health and safety purposes and the advancement of science) for critical thinking to be promoted and defended. While some celebrities, like Jenny McCarthy, are committed to misinforming the public about their children’s health – parents who recognize the deception are speaking out against it. Perhaps the best way to combat Jenny’s propaganda is to boycott Oprah. Refusing to support the promotion of dangerous pseudoscience may be our best defense.

*This blog post was originally published at Science-Based Medicine*

Nancy Snyderman Stands Up For Science: Vaccines Do NOT Cause Autism

This news from Gary Schwitzer’s excellent blog:

Dr. Nancy Snyderman of NBC News appeared on the Today Show with Matt Lauer last week, profiling a physician-author who has written that the best science does not establish a causal link between childhood vaccines and autism. Matt & Nancy.png

Lauer, in a followup question, mis-spoke and called it a “casual” link – not causal. One wonders whether he truly knows what the words mean.

Snyderman talked about how the physician-author, Dr. Paul Offit (author of “Autism’s False Prophets”), has received death threats. Snyderman herself said she had been physically ambushed by those who contend that vaccines cause autism.

As Snyderman was wrapping up the segment, Lauer said – in typical anchor throwaway language:
“Controversial subject …”

Snyderman immediately shot back, “Not controversial subject , Matt. …It’s time for kids to get vaccinated. The science is the science. It’s not controversial.”

You can see the video here or here.

Kudos to Snyderman for educating her big-bucks anchor colleague live on-the-air.

For a full review of Offit’s book, please check out this link.

Autism in Babies: Early Detection By Tracking Eye Movements?

The Wall Street Journal recently described some interesting new research related to the early detection of autism. Some scientists suggest that babies at risk for developing autism have different facial-scanning eye movement patterns. In other words, babies tend to focus on the eyes and mouth of faces in their direct line of sight. Babies at risk for developing autism have difficulty recognizing faces and their eyes may tend to wander. Although this test is not a diagnostic tool, it could be used to predict risk as early as 9 months – which could allow parents to get their children into early intervention programs sooner than they do now.

Researchers at Canada’s McMaster University recently announced that they had developed a computerized test using eye-movement sensors that aims to predict the risk of autism in children as young as 9 months. The system, which administers five eye-tracking tests over 10 minutes, measures the direction and fixation of a child’s eyes when confronted with computerized images, including human faces.

“Children with autism in general have difficulty extracting affective information from faces, and also difficulty in recognizing faces,” says Katarzyna Chawarska, director of the Yale clinic. By tracking eye movements, “we can begin to understand what interests them, how they examine objects they select for processing, and what motivates them intrinsically,” she says.

But eye-tracking won’t pick out all children with autism. That’s because the disorder can manifest itself in a variety of ways at different ages, such as a child not responding when called or failing to exhibit normal body gestures. Some children also won’t cooperate with the eye-tracking equipment.

I think it’s too early to know how valuable this tool will be in the evaluation of children at risk for autism spectrum disorders, but it’s certainly an interesting idea.

This post originally appeared on Dr. Val’s blog at RevolutionHealth.com.

Autism, Talking Turtles, And The Magic Of Disney

I spent the last few days in Orlando, Florida with my husband’s extended family. His nieces and nephews were looking forward to the vacation for months in advance, because they were really excited about going to Disney World. However, two of their parents have disabilities – my sister-in-law has stage IV breast cancer with metastases to her hip (making it impossible for her to walk), and my other sister-in-law is married to a man who is hearing impaired. Therefore, navigating theme parks can be a real challenge for the family.

As a rehabilitation medicine specialist, I’m always interested in learning about special accommodations for the disabled. So I contacted Bob Minnick, the Technical Director of Global Accessibility and Facility Safety at Walt Disney Parks and Resorts, to find out what Disney had to offer guests with disabilities.

Bob kindly agreed to meet me at his office on the Disney World grounds, and we had an animated 2 hour conversation about all the exciting programs that his team of engineers have designed. I was impressed with the depth and breadth of services they offer and thought I should let my readers know about them – because even if you or a loved one has a disability, you can still experience “the magic of Disney.”

But before I explain the specifics of the special programs at Disney, I wanted to pause to tell you a true story based on some information that Bob shared with me.

***

A young, non-verbal teen with autism (we’ll call him Johnny) was raised in rural America by two loving parents with scarce resources. They spent all their extra income on services for their son, hoping to give him the best chance at social integration possible. Johnny liked to watch cartoons, and was partial to Disney movies. He spent lots of time viewing them, replaying them many times over. His mom would often try to engage him in conversation about the cartoon characters, but sadly, he remained silent.

Years passed and the parents saved up their money to take Johnny on a trip to Disney World since they knew how much it would mean to him. He had been watching Finding Nemo a lot, and they wondered if somewhere inside his mind he could relate to the little fish with the weak fin. So when they were poring over the Disney theme park brochures and found a show at Epcot Center called “Turtle Talk” with Crush (the turtle character from Finding Nemo) they were determined to make sure that Johnny attended.

When they arrived at the auditorium one of the greeters realized that Johnny had special needs and asked if he’d like to sit in the front row. His mom’s heart skipped a beat – this was going to be a great day for Johnny.

As the lights dimmed and the crowd of kids hushed, a large, animated, moving model of Crush floated effortlessly towards the children in the front row. The blue lights and waving seaweed made the stage come alive with ocean wonder. Johnny fixed his eyes on Crush, transported to another sensory world.

As the sea turtle approached Johnny – almost nose to nose – it spoke to him. “Hello dude, how are you today?” Said the turtle.

And with a slow, deliberate voice, Johnny replied clearly, “Hello Crush. Nice to meet you.”

Johnny’s mom burst into tears and glanced at her husband as the two embraced their son – he had spoken his very first words right there in the auditorium in front of hundreds of people. And although no one else understood the significance of his response – to Johnny’s parents, it was the happiest day of their lives.

You might even say it was magical.This post originally appeared on Dr. Val’s blog at RevolutionHealth.com.

CBS Evening News: Vaccines and Autism

I’ve been following this story with interest and concern. A little birdie told me that Katie Couric has prepared a special report about the potential link between vaccines and autism for the CBS news tonight (May 12th). Sharyl Attkisson will be interviewing Dr. Bernadine Healy, former head of the National Institutes of Health, about her perspective. The CBS website has a 5 minute video clip now available on their site.

While I certainly agree with Dr. Healy that science must not be stifled, and that it’s fair game to research any environmental factor that could plausbily be related to autism, I am deeply concerned that the potential harm induced by vaccines (on kids with rare genetic disorders) will be generalized inappropriately and parents will refrain from vaccinating their children. We are already beginning to see Measles make a comeback (a disease with that can be fatal or cause irreversible brain damage) due to lower vaccination rates, and this trend may continue. Unvaccinated kids are not just a threat to themselves (because they’re at much higher risk for developing preventable diseases) but a threat to vaccinated kids as well, since vaccines are not 100% effective.

What do you think about the CBS segment? Watch it with me and we can discuss it here on my blog. Robin Morris, mother of a child with autism and a patient advocate at Revolution Health, will weigh in as well.

*Update: the full script is here*This post originally appeared on Dr. Val’s blog at RevolutionHealth.com.

Latest Interviews

IDEA Labs: Medical Students Take The Lead In Healthcare Innovation

It’s no secret that doctors are disappointed with the way that the U.S. healthcare system is evolving. Most feel helpless about improving their work conditions or solving technical problems in patient care. Fortunately one young medical student was undeterred by the mountain of disappointment carried by his senior clinician mentors…

Read more »

How To Be A Successful Patient: Young Doctors Offer Some Advice

I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

Read more »

See all interviews »

Latest Cartoon

See all cartoons »

Latest Book Reviews

Book Review: Is Empathy Learned By Faking It Till It’s Real?

I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

Read more »

The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

Read more »

Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

Read more »

See all book reviews »

Commented - Most Popular Articles