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When Is It Ok For Doctors To Write About Their Patients?


I can’t find it now, but on one of our posts somewhere MovieDoc has stated that doctors can never ethically write about their patients since they are incapable of giving truly informed consent. Besides the obvious “huh?’ response I have to the idea that patients aren’t capable of making decisions like this, I question the basic assumption that this should never happen.

The medical literature is replete with published anonymized case studies of patients with various maladies. For psychiatry in particular, early psychiatric classification was based on longitudinal descriptions of diseases. If it weren’t for the early case descriptions of Kaposi’s sarcoma in gay men published in the 1980’s, AIDS would not have been identified as a new disease. Case studies can and should be published to advance medical science. Read more »

*This blog post was originally published at Shrink Rap*

The Almighty News Release: How They Influence Health Journalism

A new post on the Embargo Watch blog, “The power of the press release: A tale of two fish oil-chemotherapy studies,” addresses an issue that had me running around in circles for hours last week.

cancer.jpg Some news organizations were reporting on a paper in the journal Cancer, reporting that it had been published in that day’s online edition.

But it hadn’t been – not when the stories were published.

Instead, all I could find was a study by the same authors on the same topic that had been published in the same journal two weeks prior.

What apparently happened, as Embargo Watch surmises as well, is that many journalists simply covered what was in the journal’s news release – not what had already been published two weeks prior – which was a more impressive article. And they rushed to publish before the new study had even been posted online – all over a very short-term study in a small number of people. Read more »

*This blog post was originally published at Gary Schwitzer's HealthNewsReview Blog*

Why Is It Taboo For Doctors To Discuss Death With Patients?

Back in the day when I was a newspaper reporter I completed a biomedical ethics fellowship at the University of Virginia Medical Center in Charlottesville, VA. In addition to sitting in on the hospital’s bioethics committee discussions, I spent much of the week shadowing a nurse in the ICU.

They called her the Death Nurse because her job was to intervene with doctors, nurses, patients and families when the time came for a patient to move from the ICU to hospice. While her title was Supportive Care, she flat out told her me her job was to help people die; not actively, but from behind the scenes by helping patients and those caring for them understand when the time had come to move from curative care to supportive care (email me if you’d like a copy of the article I wrote about her). Read more »

*This blog post was originally published at Debra Gordon on Medical Writing (and other medical topics of interest)*

Amy Wallace On The Anti-Vaccination Movement: Superb, Engaging Science Journalism

amywallace200px.jpgOne of the most engaging and clearly-written pieces of science journalism over the last year or so was published in Wired magazine last week. Amy Wallace’s, “An Epidemic of Fear: How Panicked Parents Skipping Shots Endangers Us All,” is part interview with rotavirus vaccine developer, pediatric infectious disease physician, Dr Paul Offit, and description of the anti-vaccination movement in the United States.

Wallace’s work is the centerpiece a collection of smaller articles providing science-based information about vaccination that also refutes common anti-vaccination myths including “How To Win An Argument About Vaccines” and “The Misinformants: Prominent Voices in the Anti-Vaccine Crusade”.

Wired’s follow-up discussion of the issue includes, “A Short History of Vaccine Panic,” for those of us who “have a day job” and not enough time to read Paul Offit’s 2008 book, “Autism’s False Prophets.”
Read more »

*This blog post was originally published at Terra Sigillata - PostRank (PostRank: All)*

Mainstream Media Has Blogger Envy

headline_nurse2I never knew that newspapers use to hire nurses. This nurse is working in a big city at the news desk. I wonder if she had to have a journalism degree as well as a nursing license in order to write copy for a media outlet back when nurses wore their cap. There was a time when only journalists wrote the news. Now anyone with a computer, a video camera, and a website can out scoop CNN. Kim from Emergiblog told me that some bloggers and a member of the press got into a debate at BlogWorld09. I wasn’t surprised to hear this because mainstream media thinks that its the only legitimate source for news. Come on mainstream media, we both know what’s really going on here. You have blogger envy.

I’m sorry if I sound cranky, mainstream media, but I’m really tired of all your whining. I know you don’t think that citizen journalists check their facts and that we lack reliable news sources. Some of you have even said that our stories aren’t fair and balanced. Do you really want to go there, mainstream media? I’m talking to you Fox News and MSNBC. You’ve got your nerve to criticize anyone about their scruples. Read more »

*This blog post was originally published at Nurse Ratched's Place*

Latest Interviews

IDEA Labs: Medical Students Take The Lead In Healthcare Innovation

It’s no secret that doctors are disappointed with the way that the U.S. healthcare system is evolving. Most feel helpless about improving their work conditions or solving technical problems in patient care. Fortunately one young medical student was undeterred by the mountain of disappointment carried by his senior clinician mentors…

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How To Be A Successful Patient: Young Doctors Offer Some Advice

I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

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Latest Book Reviews

Book Review: Is Empathy Learned By Faking It Till It’s Real?

I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

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The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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