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Caring Bridge: Using The Internet To Monitor Your Loved One’s Health/Hospital Status

When Beth found out that her husband had cancer, a friend suggested that she look into creating a page on CaringBridge.org.  As she puts it, “CaringBridge became a tool to help us communicate with others.”

I spoke with Sona Mehring last week, who is the owner of CaringBridge.  The site started as a simple webpage for a friend of Sona’s who was going through a difficult pregnancy.  Sona and her friends used the site to keep friends and family informed of updates, keeping everyone in the loop without having to make several phone calls each day. Read more »

*This blog post was originally published at code blog - tales of a nurse*

Nurses Stand Up For Science And Patient Safety, Then Face Jail Time?

balanceYou may have heard about the whistleblower case in Texas where 2 nurses reported a physician (Dr. Rolando G. Arafiles, Jr.) to the State Medical Board for unethical medical practices. Even though the American Nurses Association’s Code of Ethics requires nurses to report physicians who may be of harm to patients, these two were punished for doing the right thing. (Apparently, the local sheriff was a friend of Dr. Arafiles’ and took it upon himself to charge the nurses with misuse of official information, a third-degree felony in Texas, because patient medical record numbers were included in the letter to the Texas Medical Board). The criminal prosecution charges were dropped against Vicki Galle, but the case against Anne Mitchell is ongoing.

But the real story – what was Dr. Arafiles doing that was so egregious? – has yet to be made public by the nurses. And thanks to bloggers Mike Dunford, and Orac over at ScienceBlogs.com, the truth is being revealed. Video footage of Dr. Arafiles’ bizarre medical beliefs and practices are available here. Apparently, he prescribed colloidal silver to treat H1N1 flu, promoted the false idea that vaccines contain a wild array of toxins (everything from MSG to fetal tissue), and was diagnosing patients with “Morgellons disease” which he describes as a parasitic infection that produces fibers that turn host cells into plastic. Read more »

How To Get The Most Out Of Your Doctor Visit

Kevin Pho, MD, primary care physician in Nashua, N.H., blogs at KevinMD.com, member of USA TODAY’S board of contributors and a guest to the Health in 30® Radio Show, writes about the importance of doctors engaging in social media to communicate with patients.

He writes in an op-ed in USA TODAY “Doctors ignore Internet at their own peril” on January 27, 2010:

“Raise your hand if you’ve ever left a physician’s office without fully understanding what the doctor just told you. According to The New England Journal of Medicine, half of patients admit to not understanding what their doctor told them during an office visit.

As a primary care physician, being unable to clearly communicate with patients is frustrating. The typical, 15-minute office visit often is not sufficient for a thorough discussion. A better way to connect with patients is needed.”

Read more »

*This blog post was originally published at Health in 30*

Who Follows Big Pharma On Twitter?

Do “normal” people – patients, doctors, nurses, pharmacists, life scientists, etc – follow Big Pharma on Twitter? I’ve long had a hunch that most of the followers (and by followers I mean people who are actually paying attention) of Pharma accounts are primarily consultants, marketers, PR pros, social media evangelists and others interested in Pharma’s use of the Web (including myself).

So I decided to gather the key words in the profiles of a select group of Pharma companies. I used the service TwitterSheep to generate tag clouds of these profiles. This isn’t a purely scientific approach, but it’s reasonable enough to provide some insight into whose following Pharma. My friends Silja Chouquet (@Whydotpharma) and Andrew Spong (@AndrewSpong) each provided great insight into Pharma and Twitter. You can read their posts here and here, respectively.

Based on the tag clouds, here are the top ten key words in the profiles of followers of selected Pharma companies: Read more »

*This blog post was originally published at Phil Baumann*

New Hospital Policy Leaves Cancer Patient In Tears

cryingpatientA dear friend of mine (let’s call her Amanda) has metastatic breast cancer. She’s far outlived her life expectancy, thanks to advances in targeted chemotherapy, but is beginning to need more medical care. She’s the divorced mom of two teens, with a loving extended family who keeps a close eye on her.

When Amanda was recently admitted to her local hospital with abdominal pain, a new policy resulted in some unintended consequences. While she was still in the Emergency Department, a nurse came by to ask if Amanda wanted to be an organ donor. The family members – keenly aware of her grave prognosis – assumed that the nurse knew about the cancer, and was asking this question because it had been determined that Amanda was about to die.

Tearful sobs ensued. Amanda’s sister called me the next day to tell me the news. Read more »

Latest Interviews

IDEA Labs: Medical Students Take The Lead In Healthcare Innovation

It’s no secret that doctors are disappointed with the way that the U.S. healthcare system is evolving. Most feel helpless about improving their work conditions or solving technical problems in patient care. Fortunately one young medical student was undeterred by the mountain of disappointment carried by his senior clinician mentors…

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How To Be A Successful Patient: Young Doctors Offer Some Advice

I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

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Latest Book Reviews

Book Review: Is Empathy Learned By Faking It Till It’s Real?

I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

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The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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