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Diabetes Advocate Asks PR Companies To Stop Exploiting Patient Bloggers

Quick post to the PR professionals in the healthcare sphere:

When someone dies, it is terrible tragedy.  That person leaves behind a family, loved ones, and – especially when they die young – their future.  If someone dies as a result of diabetes, or due to complications from diabetes, or from something else entirely but they happened to have diabetes, and you decide to exploit their death to gain pageviews for your website?  (See also:  Brittany Murphy, Casey Johnson)

Come on.

There’s a difference between passing on information that could help people improve their lives, and then there’s pure, TMZ-style exploitation.   Read more »

*This blog post was originally published at Six Until Me.*

Social Media 2.0: When Real Experts Broadcast Themselves


Tweety Bird
Image by sirwiseowl via Flickr

Disclosure: I’m fascinated with Technology in general and social software and communities in particular. I’m one of Twitter’s biggest fanboys (here’s proof). I blog and tweet often about these media because I believe it’s important that we understand our relationship with Technology (and for me, Technology is more than just gadgets – for instance: I consider Law, Democracy, Religion and Capitalism technologies – but that’s another post).

I also believe that we need better or more original conversations about the Web and its deepening influences on our lives, our businesses, our sciences and our health care. Social Media pundits (or however they refer to themselves: gurus, evangelists, mavens) for too long have held the dominant voice in these discussions.

One phenomenon which our Web has engendered is the ability for virtually anyone to express their opinions and experiences and perspectives in accordance with their mastery of media. And therein lies a pesky issue: one’s accumulation of social attention for a particular field doesn’t always correlate with their expertise.

Over the last decade, many brilliant contributors have offered important and refreshing perspectives on the promises of the web. But some of these ideas have yet to be vetted and validated by closer scrutiny and scientific inquiry. The truth is not always intuitive. It’s easy, therefore, for appealing ideas to have fundamental flaws. Read more »

*This blog post was originally published at phil baumann online*

Online Health Information: Does It Make You An Expert?

The advent of the internet, combined with social media, has made everyone experts and has increased the disdain for authority.

No where is that more apparent than the firestorm that surrounds vaccines and its detractors.

The Los Angeles Times’ James Rainey writes a column on the phenomenon, observing the backlash against a well-written, nuanced piece debunking the link between vaccines and autism.

But as we know, those who already believe there is a connection are unlikely to be swayed. And on the web, it’s easy to find data and studies that fits an already established mindset. Read more »

*This blog post was originally published at KevinMD.com*

A Revolution Is Born: An Interview With ePatient Dave

epatientdaveDave deBronkart is a Freedom Fighter. In 2007, Dave battled metastatic cancer and emerged a passionate advocate for leveraging the Web to connect patients with the content and support and inspiration they need to cope with the human consequences of disease.

The Web has brought forth new ways of connecting the world and brings with it questions and answers about how to safely and effectively extend the power of health care from face-to-face meetings to remote but important regions of human experience. It’s important for us to understand the integrative nature of health care: no single perspective will yield approaches that work. Rather, we will need the perspective of all participants. Read more »

Female Surgeon Propositioned By Patient Via Facebook

There is an interesting article in E-Health Europe about how patients try to contact doctors on Facebook, the popular social networking site, and how doctors shouldn’t respond to them. In my “Medicine and Web 2.0” university credit course, we cover this important issue several times and I try to provide students with useful pieces of advice about how to avoid such problems.

The Medical Defence Union said it was aware of a number of cases where patients have attempted to proposition doctors by sending them an unsolicited message on Facebook or similar sites.

The medical defence body said it would be “wholly inappropriate” to respond to a patient making an advance in such a way. Read more »

*This blog post was originally published at ScienceRoll*

Latest Interviews

IDEA Labs: Medical Students Take The Lead In Healthcare Innovation

It’s no secret that doctors are disappointed with the way that the U.S. healthcare system is evolving. Most feel helpless about improving their work conditions or solving technical problems in patient care. Fortunately one young medical student was undeterred by the mountain of disappointment carried by his senior clinician mentors…

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How To Be A Successful Patient: Young Doctors Offer Some Advice

I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

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Latest Book Reviews

Book Review: Is Empathy Learned By Faking It Till It’s Real?

I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

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The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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