August 4th, 2011 by AndrewSchorr in Opinion, Research
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There are big companies like Quintiles that run clinical trials around the world. There are local clinics that specialize in clinical trials and make a lot of money at it. There are, of course, pharmaceutical companies and device manufacturers who depend upon the results to gain marketing approval for new products. People in all those groups know a lot about trials.
But the perspective that counts is the view from you and me – patients. Most of us do not enroll in clinical trials. We don’t want to get too up close and personal with anything “experimental.” And often our doctors never tell us about available trials anyway since it can be a lot of paperwork for them. Given that most people don’t enroll in trials and new science is delayed because of it and also because most people in trials are not journalists, I thought I’d put hunt and peck to the computer keyboard and speak out about trials. I am especially motivated because I have participated twice. The first one, a leukemia trial in 2000, I believe, saved my life. And I enrolled in a second one, studying a new drug for clots in the legs (deep vein thrombosis or DVT) just a week and a half ago.
I enrolled in the DVT trial because 1) the first one worked for me and 2) I crow all the time about how patients should always consider being in a trial as a treatment option. I had to put up or shut up. So I signed on the dotted line.
This particular trial, Read more »
*This blog post was originally published at Andrew's Blog*
July 28th, 2011 by AndrewSchorr in Health Tips, True Stories
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You know I am a cancer survivor – 15 years down the road from a leukemia diagnosis and enjoying a 10 year remission. So whenever something seems weird about my health it’s cancer coming back, right? Wrong! Just how wrong was proven last night. I am writing this from my hospital bed in Seattle.
The first symptom of a possible problem came three days ago when I had soreness in my right calf. A pulled muscle? Maybe. But I had not noticed straining it. Back at the gym the next day I had soreness again but thought it was no big deal. Last night it was worse. It hurt some to walk. I got home and, after my wife and son were asleep, got ready for bed. I had a slight fever and then noticed the right calf was not only sore, but swollen and warm. Very strange. I’d never seen that before.
Trying not to be stupid I called the 24-hour consulting nurse. She immediately began to focus on deep vein thrombosis (DVT), a worrisome condition that affects about two million Americans a year and can lead to a life threatening situation. She had a doctor call me. Normally those doctors would rather make a house call then send you to the more costly emergency room. But not this time. “Dr. Steve” urged me to go to the ER rather than let a DVT progress and endanger my life. An ultrasound exam would determine if it was really a DVT. Read more »
*This blog post was originally published at Andrew's Blog*
July 16th, 2011 by AndrewSchorr in Opinion
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What? Just what am I talking about? Give me a minute.
More and more people are telling me too often they are encountering doctors who 1) don’t look them in the eye 2) don’t listen to them 3) don’t touch them or get anywhere near them and 4) stay focused on their a) computer b) smartphone or c) iPad.
More of us are saying we are “mad as hell and are not going to take it anymore” just like the character in the movie “Network” years ago. We find another doctor. 
I am happy to report that an increasing number of the gray haired doctors who run medical schools are agreeing with us. Doctors need to be better communicators. They need to celebrate human contact rather than devote themselves to only technology and leading edge science. The professors also want tomorrow’s doctors to know how to work as part of a team. That’s the core of multi-disciplinary care that we talk about all the time these days. It’s smart minds working together for you and me – and to avoid medical errors – which, by the way are estimated to kill 98,000 U.S. patients a year. The idea is Read more »
*This blog post was originally published at Andrew's Blog*
June 26th, 2011 by AndrewSchorr in Health Tips, True Stories
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Hi! Greetings from Breckenridge, Colorado. At 10,000 feet, I am told it is the highest resort town in North America. The Rocky Mountain scenery is breathtaking. But there’s a problem for about one in four of us who visit here, especially people like me who live at sea level. We can get hit with high altitude sickness and a few days ago, I was one of the unlucky ones.
What happens is your body isn’t used to the thin air and your blood has difficulty getting enough oxygen to your body. It usually happens at altitudes over 8,500 feet. You get an ongoing headache, you feel tired, you have insomnia (I was sleepless for two nights!), you could have nausea and certainly fatigue. Drinking lots of water and passing up alcohol can help, but even then some people have problems.
When I finally saw a family doctor – Doctor P.J. – he told me it’s genetic. Some people have trouble “acclimatizing” and others don’t, but there’s no easy way to know who will be affected before you make the climb. Now that I know I have difficulty I will take a prescription medicine (Diamox) ahead of coming up here again.
Doctor P.J. says even Read more »
*This blog post was originally published at Andrew's Blog*
June 19th, 2011 by AndrewSchorr in True Stories
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This has been a busy time for my family as my daughter, Ruthie, has just graduated from high school. Because we live in a close-knit, fairly small town, we were all zipping around in the days afterward attending graduation parties. We knew many of the 400 or so young people who graduated. In most cases they are blessed with good health and the prospect of a fun summer followed by a college education. But the health picture isn’t sunny for all of them.
I heard this story at one of the parties this weekend: A leader of the senior class, who had leukemia as a child and received many heavy-duty medicines to cure it, is now facing a kidney transplant. His kidney function numbers have taken a nose dive. Usually the wait for a transplant would be a couple of years or more and dialysis for a teenager. In the meantime, this would totally disrupt his life. But there is another way. We’ve talked about it very recently in our videos about kidney transplant: receive a donated kidney from someone who is living.
That is exactly what is happening. The young man will receive a kidney from Read more »
*This blog post was originally published at Andrew's Blog*
