December 4th, 2011 by DavedeBronkart in News, Research
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Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one.
This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of Medicine might have read like a House television script, but it was a real-life glimpse of what the most optimistic health IT advocates are hoping will become commonplace in U.S. health care: Mining EHR data to arrive at treatment decisions.
In a Health IT Exchange piece (on TechTarget) EHR data spurs real-time evidence-based medicine, Don Fluckinger summarizes (and dramatizes, accurately) this early specimen of care being transformed – beyond the literature – by looking at past records. Faced with a 13 year old lupus patient with a complex problem (see article for details)…
In four hours, they did a retrospective study of similar patients in the hospital’s data warehouse…, and decided to move ahead with the treatment based on the previous results of 98 [similar patients] … The authors said they will never know if they made the “correct” decision, but they did know that — in absence of randomized trial research to support their decision — they acted on the evidence of the best data available, coupled with their experience.
“Our case is but one example of a situation in which the existing literature is insufficient to guide the clinical care of a patient,” the authors wrote. …
What are we waiting for, people?? Imagine if Read more »
*This blog post was originally published at e-Patients.net*
October 11th, 2011 by DavedeBronkart in Health Policy, Opinion
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Last week the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering. This falls on top of the 11 year history reported last year by the Kaiser Family Foundation: wages and inflation are up ~40%, while health costs and worker contributions were up 138% and 159%:
No wonder we feel squeezed. (Last week’s announcement comes on top of this history.)
This has enormous human impact. Read more »
*This blog post was originally published at e-Patients.net*
September 11th, 2011 by DavedeBronkart in News
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Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position.
The issue is whether by default all patients have an EHR. “Opt-out” means you’re in by default – your records will be stored electronically – and you can opt out if you want. “Opt-in” means you do not have an EHR unless you specifically ask for one.
The group, the Consumer Health Forum, cites evidence from the neighboring country of New Zealand, in which Read more »
*This blog post was originally published at e-Patients.net*
August 16th, 2011 by DavedeBronkart in Opinion
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An SPM member emailed this, with the playful subject line “A New e-Patient”:
(Click the image to go to the high-res on the comic’s site; © Copyright 2011 King Features Syndicate, all rights reserved.)
Funny comic, but it’s a common misconception that “e-patient” = anyone who googles (or bings, or webmd’s, or…). Wrong. E-patients are empowered, engaged, educated etc – not mindless, and not likely to freak out at the first thing they read.
When you search Read more »
*This blog post was originally published at e-Patients.net*
July 26th, 2011 by DavedeBronkart in Opinion
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“Health is social,” says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com.
Slate has a dramatic story of how a mother’s Facebook network helped spot – rapidly – Kawasaki Disease, a rare auto-immune disease that the family’s doctors had initially missed.
Her social network contains some medically knowledgeable people. (Do you have any docs, nurses, etc in your Facebook circle?) Note that friends’ availability is sometimes far greater than a doctor’s office.
Read how the diagnosis unfolded. And read what her family physician said, when she called from the E.R.:
“You know what?” he said, “I was actually just thinking it could be Kawasaki disease. Makes total sense. Bravo, Facebook.”
Then this, as the crisis wound down: Read more »
*This blog post was originally published at e-Patients.net*