December 28th, 2011 by Berci in True Stories
Tags: Children, Diabetes, E-Patient, Fun, Glucose, Insulin Pump, Juvenile Diabetes, Medicine, Tattoo, Type 1
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I was just making preparations for the top 2011 posts I’m planning to write in the upcoming days when I bumped into this cute story about a diabetic kid who felt ashamed to wear the insulin pump so his parents got insulin pump tattoos.
Some parents get tattoos of their child’s name, but Philippe Aumond and Camille Boivin went one better.
In a show of solidarity, they each have an image of an insulin pump tattooed on their abdomens, declaring that they are “forever linked” to their son Jacob.
“It is a great thing for him, and we were thrilled just to see his smile when he saw those pumps. It made our day, that’s for sure,” said Boivin, 36, from the family’s home in La Sarre, Que.
*This blog post was originally published at ScienceRoll*
December 15th, 2011 by Jessie Gruman, Ph.D. in Opinion, True Stories
Tags: Atul Gawande, Cancer, End Of Life Care, Jessie Gruman, LinkedIn, News, Palliative Care, Remission, Time, Waiting
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That old Tom Petty song, “The Waiting is the Hardest Part,” keeps running through my mind. Four of my friends are waiting to hear the results of medical tests taken last week.
- Lucas has exhausted all of the standard cancer therapies for rectal cancer and is waiting to hear if he is a candidate for any experimental treatments.
- Sam, who has lived through aggressive treatment for multiple cancers, is waiting to hear results from a test that will tell him if the fact that he is so very, very sick is due to one of them recurring.
- Lucy just had major abdominal surgery and is waiting to hear the results of the pathology report that will determine whether or not her cancer can be treated at all.
- Phil, who has been in remission from two different leukemias, had Read more »
*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*
December 13th, 2011 by AndrewSchorr in True Stories
Tags: ALS, Appreciation, Cancer, Death, Dying, End Of Life, Life, Little things, Mortality, Present, Relationships, Treatment, Tuesdays With Morrie
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Film adaptation of "Tuesdays with Morrie"
Many of you know about, or have read, the highly recommended book, Tuesdays With Morrie. I am reading it now with my 14-year-old son, Eitan, as part of an assignment for his ninth grade English class. Morrie, a college professor in Boston, was dying, withering away with ALS. Each Tuesday he would have a visit from one of his favorite former students, Mitch, a journalist from Detroit. Morrie, a man in his 70’s, mused about many things including the meaning of life and the inevitability of death. He was prepared for his end.
The other day I spoke about that book with a former high school English teacher – not Eitan’s. The circumstance was not good. The woman, 37, had been diagnosed with stomach cancer just six weeks ago. She’d been having heartburn and it wouldn’t go away. Endoscopy showed the cancer and other tests revealed its spread to her liver and lung – stage 4. The woman and her husband, her high school sweetheart, sat across from me at lunch. They have three young children, age Read more »
*This blog post was originally published at Andrew's Blog*
December 9th, 2011 by Elaine Schattner, M.D. in Opinion, True Stories
Tags: Diverticulitis, Empowered Patient, EMR, Health IT, How To Find A PHR, Medical Records, Personal Health Record, PHR
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Over the weekend I developed another bout of diverticulitis. Did the usual: fluids, antibiotics, rest, avoided going to the ER, cancelled travel plans.
One of my doctors asked a very simple question: is this happening more frequently? The answer, we both knew, was yes. But I don’t have a Personal Health Record (PHR) that in principle, through a few clicks, would give a time-frame graph of the bouts and severity of the episodes over the past several years.
The last time this happened, and the time before that, I thought I’d finally start a PHR. Like most compulsive patients, I keep records about my health. In the folder in my closet in a cheap old-fashioned filing box, the kind with a handled top that flips open, I’ve got an EKG from 15 years ago, an Read more »
*This blog post was originally published at Medical Lessons*
December 6th, 2011 by KerriSparling in True Stories
Tags: Compliance, Endocrinology, Feelings, Glucose Control, Guilt, Hemoglobin A1C, Insulin Pump, Type 1 Diabetes
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Two weeks ago, I was in the emergency room for some severe stomach pain, down on the lower right hand side of my abdomen. After consulting with Dr. Google (bastard), I realized that it could be appendicitis. Knowing I was heading to Toronto the next afternoon, I didn’t want to take any chances with this pain. So I headed off to the ER to check things out.
Looooong story made Twitter-esque short, I didn’t have appendicitis. I just had some rogue stomach pain. However, while I was at the hospital, I asked to have my A1C run. I figured I was there, they were already drawing blood, so what’s one more vial?
“Can you guys grab an A1C while you’re at it?” I asked.
“Is your diabetes under control?” asked the doctor.
“Um … define control? I wear a pump, I wear a CGM, and I’m very aware of my disease. But I’ve been having a hard time juggling things lately, on just about every level, so I’m pretty sure my A1C is crap.”
The doctor shot me a very rude, very judgmental look. I shot one back at him.
“I’m asking you to run an A1C because I’m trying to regain control. I don’t have this nailed down and perfected, but I’m trying. Is that the wrong thing, in your opinion?” Read more »
*This blog post was originally published at Six Until Me.*
