May 29th, 2011 by DavedeBronkart in Research
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The Society for Participatory Medicine was well represented last week at the 14th ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented:
- Jane Sarasohn-Kahn of Health Populi gave the keynote for Day 2
- Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about which I’ll be writing soon. (Jessie is founder and president of the excellent Center For Advancing Health.)
- Brian Ahier presented on the status of health IT, as Meaningful Use rolls out. (“You can’t measure the improvements that you gotta measure, unless you have computers keeping track of it.”)
- I gave a half-day pre-conference workshop titled “Participatory Health: Reshaping Patient Care.” I’m told the workshop had 40-50% higher registration than usual: interest in participatory medicine is strong.
An unexpected bonus was that right outside the workshop door, a poster presentation addressed some questions people often ask about patient participation and online health records:
- Will patients with problems actually use a PHR (personal health record)? (Many observers say PHRs are a non-starter, a pointless exercise.) Read more »
*This blog post was originally published at e-Patients.net*
May 29th, 2011 by Berci in News
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There is a really moving story on CNN.com about a blogger who left a post mortem message on his blog after his battle with cancer. I’ve seen many blogs which just became archives after the blogger (mainly cancer patients) passed away. This is the first time in my experience when the blogger made this transition himself.
“Here it is. I’m dead,” read the last internet post of Derek K. Miller, who died last week after more than four years of blogging about his struggle with colorectal cancer.
“In advance, I asked that once my body finally shut down from the punishments of my cancer, then my family and friends publish this prepared message I wrote — the first part of the process of turning this from an active website to an archive,” he wrote on his blog, penmachine.com.
*This blog post was originally published at ScienceRoll*
May 29th, 2011 by Steven Roy Daviss, M.D. in Research
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You know that 1979 Boomtown Rats song, “I Don’t Like Mondays.” (This Youtube music video features a very young-looking Bob Geldof.) The song is about the 1979 shooting spree on a Monday morning at a San Diego elementary school. The shooter’s only state reason for doing it was that she didn’t like Mondays.
The silicon chip inside her head
Gets switched to overload
And nobody’s gonna go to school today
She’s gonna make them stay at home
It turns out that — contrary to popular impression that Mondays are the worst day of the week — Tuesdays are the worst day of the week. According to a piece by Chris Hall (@hallicious) on HealthCentral, Tuesdays are the worst day of the week (moodwise) while Sundays are the best. This is based on mood rating scores from 500 users of the Mood 24/7 service, which HealthCentral licenses from Johns Hopkins University. After you sign up for the free service, the software sends you a text message at random times, and you text back your mood rating for that day.
So, you’d think that the latest date of the coming apocalypse, October 21, might be on a Tuesday. But it’s not — it’s on a Friday. Maybe it will get moved again.—–
*This blog post was originally published at Shrink Rap*
May 29th, 2011 by AndrewSchorr in True Stories
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Ruthie and Andrew
When I was diagnosed with leukemia my daughter, Ruthie, was just two and a half. She has vague memories of our household being turned upside down with worried, hushed conversations and friends and relatives calling A LOT. Because a leading specialist, Dr. Michael Keating from MD Anderson Cancer Center, advised against having treatment right away (something better was coming along), I did not have treatment for more than four years. By then Ruthie was seven. She has vivid memories then of me going off to Houston, accompanied by her mom, for a week of initial treatment and then successive weeks of treatment every month for quite a while back here in Seattle. She also remembers me tired, nauseous and, some days, in bed. The better memory is me participating in a clinical trial that worked and then returning to a full and active life.
Ruthie and I had never really talked about her observations of this until last night. Now, almost 18, Ruthie will be headed to college soon. It’s been a “journey.” As with many teenagers, they can be rebellious and oppositional, at times. But, in most cases, they eventually return to that loving person you remember. Ruthie has been making that return and, as she does, we’ve been talking more.
Last Friday night Ruthie called me in a panic. Read more »
*This blog post was originally published at Andrew's Blog*
May 28th, 2011 by GruntDoc in Opinion
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We (especially doctors themselves) like to think docs are smart. While all are very well educated in medicine, it doesn’t mean they’re actually smart at much else. Docs are well known to lose gobs of money in stupid ‘investements’ like Avacado farms and ostrich ranches (and yes, there are those with the chicken ranch problems, as well).
Here’s a dumb thing some docs are adopting I hope goes away quickly, as it’s actually not in the best interest of medicine:
When I walked into the offices of Dr. Ken Cirka, I was looking for cleaner teeth, not material for an Ars Technica story. I needed a new dentist, and Yelp says Dr. Cirka is one of the best in the Philadelphia area. The receptionist handed me a clipboard with forms to fill out. After the usual patient information form, there was a “mutual privacy agreement” that asked me to transfer ownership of any public commentary I might write in the future to Dr. Cirka. Surprised and a little outraged by this, Read more »
*This blog post was originally published at GruntDoc*
