June 1st, 2010 by Bryan Vartabedian, M.D. in Better Health Network, Health Policy, Opinion, True Stories
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I regularly talk to my patients’ parents about social health. What parents do, what they think, and how they socially experience their child’s health problems has become an interest of mine.
I can hear it now: “Of course patients won’t discuss their social health activities with you, you’re a doctor.” Perhaps, but I don’t think so. Actually, I’ve had some very interesting open dialog with a few of my long-term patient-parents. Many have children suffering with chronic diseases such as Crohn’s disease, eosinophilic enteropathy, and the like. The relationships I cultivate are open, and the nature of my dialog has been just as consistently open as other aspects of our relationship.
Interestingly, while nearly all have used online search to understand their disease, most have never connected with other disease sufferers in the online space. The concept of crowdsourcing is met with puzzled looks. Sure they’re e-patients, but I would characterize most of my patients as e-patients. The question is: What does that really mean? Read more »
*This blog post was originally published at 33 Charts*
May 12th, 2010 by Edwin Leap, M.D. in Better Health Network, Health Policy, Opinion, True Stories
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There is discontent in the house of medicine. So many physicians struggle. They seem to wade through uncertainty every day — uncertain about diagnoses, about pain, about disposition. We find ourselves uncertain about our jobs, our futures, our finances.
The consultants we call are uncertain about their practices and whether they can remain viable in the coming years as medicine evolves into something we may find unrecognizable.
Some days, as I enter my 17th year of practice, I don’t know if I can bear to walk around our little department for 10 or 20 more years, like some gerbil on an exercise wheel. I am uncertain if I can bear the weight of more entitlements, more confabulated stories, more regulations, and manufactured drama. I wonder if I can endure decades more of circadian assaults on my brain. Read more »
*This blog post was originally published at edwinleap.com*
May 8th, 2010 by KevinMD in Better Health Network, Health Policy, Health Tips, Humor, News, Opinion
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What’s one of the fastest growing healthcare fields? A professional nitpicker — as in the profession of picking lice out of hair.
In a recent New York Times story, it’s becoming apparent that parents will do anything to get rid of lice. Part of it is the stigma associated with it, part of it is the “ickiness” factor. As a parent myself, I certainly understand the sentiment. Read more »
*This blog post was originally published at KevinMD.com*
May 8th, 2010 by Debra Gordon in Better Health Network, Health Tips, Opinion, True Stories
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So I’ve been thinking a lot about stress lately.
Obviously, it’s because I’m in one of those work/personal periods where the word comes in all capital letters and my dreams seem to be caught on a continual loop of taking-an-exam-in-a-class-I-forgot-to-attend-all-semester (and yes, I’ve been out of school for 26 years now)/realizing-I-just-bought-a-new-house-and-have-to-move/or, finding-that-I-have-10-stories-due-tomorrow (for the newspaper at which I haven’t worked in years).
This latter dream comes closest to my own situation at the moment given that I find myself with just a wee bit too much work for the time allotted (ok, maybe a lot too much work). I’m coping — going to bed later, getting up earlier, reaching out to a couple of writer friends for help) but it nonetheless has my cortisol and norepinephrine hormone production on overtime.
Which brings me to the point of this blog. Your health on stress. Read more »
*This blog post was originally published at A Medical Writer's Musings on Medicine, Health Care, and the Writing Life*
May 1st, 2010 by Gwenn Schurgin O'Keeffe, M.D. in Better Health Network, Interviews, Opinion, Patient Interviews, True Stories
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We live in a society obsessed with outside beauty, so it’s no wonder that parents whose children are born with any imperfection worry endlessly about how their child will be accepted in society.
As parents, though, our job is to make sure our kids see themselves as much more than whatever obstacles are tossed their way, as tough as that may be.
Adam and Donna Bell felt that anguish first hand in 2005 when their son Ethan was born with cleft lip and palate. Ethan now has an adorable smile and hardly a scar at all thanks to the amazingly talented doctors at the NYU Institute of Reconstructive Plastic Surgery.
Wanting to do more to raise awareness about the nearly 1 in 600 infants born with cleft (opening) lip or palate each year, the Bell’s founded Smiley Faces Foundation, a nonprofit who strives to not only assist the Institute of Reconstructive Plastic Surgery at NYU Langone Medical Center, but also help provide treatment for all children who need cleft lip and palate repair in the United States. Read more »
*This blog post was originally published at Dr. Gwenn Is In*