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Should Patient Engagement Be Regulated?

Last month in Cambridge I met Twitter friend Bryan Vartabedian, M.D. (Twitter @Doctor_V) at a meeting at Vertex Pharmaceuticals. We’ll cross paths this fall on the conference speaking circuit. [Recently] on his blog he raised a rowdy, rough, but valid point: As e-patients (obviously including me) get into the business, should they/we be regulated? He said:

  • Will industry be required to publicly list monies used for sponsorship, travel and swag support of high profile patients in the social sphere?
  • Should high visibility patients who serve as stewards and advocates disavow themselves of contact with pharma just as many academic medical centers have begun?
  • As is often the case, I don’t have an answer. I’m just raising the questions. Smart questions. My short answer:

    • Fine with me if industry discloses those payments. Nothing to hide.
    • On the other hand, I think it’s nuts and counterproductive for consumers in any industry to disconnect.

    Academic medical centers have tons of evidence of influence corrupting the academic processes that are at the core of (supposed) science. For patient advocates I don’t see that there’s currently a problem that would justify adding regulators, the ensuing budget impact, etc.

    Besides, there’s a key difference: Academics are supposed to vet industry. It’s their job in this context. Patients, on the other hand, are the consumers — the ones the industry’s supposed to serve. Read more »

    *This blog post was originally published at e-Patient Dave*

    Basic Health Education: Not So Basic

    The past two weeks I’ve been the “dayfloat” resident on the cardiology inpatient service. With the 30-hour-shift work “restrictions” placed on medical residents, there has been a need for new systems of care to ensure the safety of newly admitted patients and cardiology dayfloat is one of them. My job is to round with the post-call team, help them get out of the hospital on time, and then take care of their patients through the end of the work day. It’s a fairly easy rotation, as they go, though because I “float” from one team to another without patients of my own, it’s also not the most satisfying.

    Towards the end of my two week rotation, I was paged by a nurse because a patient’s husband wanted an update on his wife’s condition. Glancing at my “signout” — a one-page synopsis of the patient’s presenting illness and hospital course — I learned that Mrs. FN (as I will call her) was admitted to the hospital for heart failure secondary to “medical noncompliance.” It appeared that she had not had any of her medications for well over a week, which likely precipitated the shortness of breath and fluid overload that led to her admission. On top of this, the patient had a number of “dietary indiscretions” including eating Chinese food, which likely only exacerbated her condition. Read more »

    *This blog post was originally published at BeyondApples.Org*

    How To Pick Good Health Insurance

    Unless your doctor is a policy expert, in healthcare administration, a researcher, an author or blogger, I seriously doubt he will be reviewing an important report card that helps you pick the best health insurance plan that keeps you healthy. Published annually by the National Committee for Quality Assurance (NCQA), this year’s report card ranks 227 health plans across the country on their ability to keep you healthy and well, treat you quickly, and how patients feel about their insurance coverage.

    Because unlike banking or airlines where there is not much difference in ATM machines or planes, there is a big difference in whether a health insurance plan helps in keeping its enrollees healthy. Do children get their vaccinations? Do healthy mothers get screened for breast cancer or cervical cancer with mammograms and pap smears respectively? Do kids only get antibiotics appropriately for strep throat and not overtreated and unnecessarily when they have a viral illness or cold? Are adults over 50 screened for colon cancer (something Dr. Oz can relate to). Read more »

    *This blog post was originally published at Saving Money and Surviving the Healthcare Crisis*

    Snorin’ In The USA

    Guest post by Dr. John Henning Schumann

    I’m not a drum banger for the latest “epidemics” to come to media attention, whether it’s H1N1, Vitamin D, or getting your kids CAT-scanned routinely.

    But there comes a time in every blogger’s life when he must comment on something that does bubble up into consciousness a tad, shall we say, often.

    I’m talking here about an epidemic that we are learning more about each passing day. Something that you or someone you know or sleep with may be diagnosed with, and ultimately treated for (an interesting national problem in its own right): Obstructive sleep apnea (OSA).

    What is it, you ask? A new national scourge? Stop the presses! Can I catch it? Read more »

    *This blog post was originally published at ACP Hospitalist*

    The Practice Of Medicine: When A Funeral Provides Perspective

    Here’s my column in this month’s Emergency Medicine News:

    I have practiced with the same group, in the same hospital, for 17 years. Because we have been together so long, our group is a family. So it was with enormous grief that we buried our founder, Dr. Jack Warren, 11 years ago after a tragic car crash. That wound is still open, but we still tell stories about his humor, his compassion, and his grace.

    As I write this I am tending another wound, or I should say our group is tending another. A second partner passed away last week. Unlike the sudden horror of the first death, the second was progressive, as our friend and partner, Dr. Howard Leslie, left us by degrees, the victim of metastatic melanoma. Jack and Howard founded our group before any of the rest of us arrived. Both of them are buried in the same wooded, hillside nature preserve. Pieces of our group, pieces of ourselves, interred in the red-clay earth. Just as they practiced before the rest of us, so they went to sleep before the rest of us. I think they’ve gone ahead to show the way. So they can one day help us adapt to peace the way they helped us adapt to practice.

    But both deaths remind me of partnership. Medicine today is chaotic and difficult for many reasons. Part of the problem is that government and regulatory bodies overwhelm us and litigation threatens us. Part of the problem is that we, and our patients alike, have untenable hopes and impossible standards for the practice of medicine. Read more »

    *This blog post was originally published at edwinleap.com*

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    How To Be A Successful Patient: Young Doctors Offer Some Advice

    I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

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    Latest Book Reviews

    Book Review: Is Empathy Learned By Faking It Till It’s Real?

    I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

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    The Spirit Of The Place: Samuel Shem’s New Book May Depress You

    When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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    Eat To Save Your Life: Another Half-True Diet Book

    I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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