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What Should People Receiving Health Care Be Called? Empowered Patient Vs. Health Care Consumer

“There is a better way – structural reforms that empower patients with greater choices and increase the role of competition in the health-care marketplace.” Rep. Paul Ryan (R-WI) August 3, 2011

The highly charged political debates about reforming American health care have provided tempting opportunities to rename the people who receive health services.  But because the impetus for this change has been prompted by cost and quality concerns of health care payers, researchers and policy experts rather than emanating from us out of our own needs, some odd words have been called into service.  Two phrases commonly used to describe us convey meanings that mischaracterize our experiences and undervalue our needs: “empowered patient” and “health care consumer.”

As one who has done serious time as a patient and who spends serious time listening to talks and reading the literature that use these words to describe us, I ask you to reconsider their use.

“Empowered patient” The fabrication of the verb “to empower” from the noun “power” was used in the civil rights and community development movements to describe a benevolent bestowal of influence on disenfranchised individuals and groups by those who had previously excluded them.  When used in relation to health care, the word perpetuates the idea that we are passive entities, waiting to be gratefully endowed by our clinician or a new policy with the right and ability to act on our own behalf.  Our “empowerment” takes place not as a result of our own will or preference, but rather because we have been given permission to act in a different way by some external agent.

This word is Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

Health Care Attorney Warns About HIPAA Privacy Issues In Social Media

This is the first of a three part post addressing the legal concerns of social networking in the health care arena.

Legal expert, David Harlow, Esq., Health Care Attorney and Consultant at The Harlow Group, LLC in Boston, addresses the legal issues.

Q:  Barbara:
What are the legal implications for doctors, nurses and hospitals engaging in social media?

A:  David: Health care providers are concerned about HIPAA privacy issues – HIPAA violations may occur as a result of staff posts, or as a result of patient, family or caregiver posts – as well as potential liability for medical advice provided on line.  Physicians and nurses have been sanctioned and fired for privacy breaches via social media, so these are real concerns.  Some communications that folks think are OK may in fact be violations of HIPAA or state privacy laws, so great care in training is needed.  In addition, Read more »

*This blog post was originally published at Health in 30*

Friendly Legal Chat: EMRs May Create A Plethora Of New Ways For Physicians To Be Sued

I spent the entire last weekend with an attorney, not a desirable circumstance for most physicians. However, I wasn’t being deposed or interrogated on cross examination. This was a rendezvous that we both sought with enthusiasm.

Lewis is my closest friend, a bond that was forged since we were eight years old. We are separated now only by geography, and we meet periodically because we both treasure the friendship. Earlier this year we rolled the dice in Vegas. Last weekend, we sweated in the sweltering heat of the Mile High City. Next stop? Back to Denver with a few youngins’!

Lewis is the managing partner in a prominent west coast law firm that specializes in tax evasion. (Or is it tax avoidance? Am I confusing my terms here, Lew?) He has been redrafted to this position because he has earned the respect of his colleagues. Clearly, both Lewis and I have ascended to the highest strata of our professions. Lewis is in charge of a large law firm that has global reach; he travels all over the world cultivating business and negotiating deals; and he navigates clients through complex and labyrinthine legal conundrums. I, an esteemed community gastroenterologist, perform daily rectal examinations and counsel patients on flatulence.

I am sure that readers will agree that our future professional prestige is already evident in this photo of us taken several decades ago. Read more »

*This blog post was originally published at MD Whistleblower*

When Is It Ok For Doctors To Write About Their Patients?


I can’t find it now, but on one of our posts somewhere MovieDoc has stated that doctors can never ethically write about their patients since they are incapable of giving truly informed consent. Besides the obvious “huh?’ response I have to the idea that patients aren’t capable of making decisions like this, I question the basic assumption that this should never happen.

The medical literature is replete with published anonymized case studies of patients with various maladies. For psychiatry in particular, early psychiatric classification was based on longitudinal descriptions of diseases. If it weren’t for the early case descriptions of Kaposi’s sarcoma in gay men published in the 1980’s, AIDS would not have been identified as a new disease. Case studies can and should be published to advance medical science. Read more »

*This blog post was originally published at Shrink Rap*

Veterans Affairs CIO Says iPads Need To Be Secured For Medical Use

In a nod to the reality of rapid physician adoption of tablets and smartphones, the CIO of the VA system recently stated that the VA must find a way to accommodate  iPads at a  conference on federal information technology.

According to Baker, the fact is that 100,000 residents rotate through the VA each year and “they’re all carrying mobile devices”. In order for them to do their jobs, they want to be able to access resources on the internet.

In an article published at nextgov.com, CIO Roger Baker said:

I’ve told my folks I don’t want to say ‘no’ to those devices anymore…I want to know how I say yes.

The key, according to Baker, is security. While the iPad can be secured, proper protocols need to be developed. Otherwise, the device can be likened to a “huge unencrypted USB stick with no pin”. In order to facilitate development of security protocols, a pilot program has been launched giving out iPads to select employees in situations where security is looser. Read more »

*This blog post was originally published at iMedicalApps*

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