December 15th, 2011 by Jessie Gruman, Ph.D. in Opinion, True Stories
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That old Tom Petty song, “The Waiting is the Hardest Part,” keeps running through my mind. Four of my friends are waiting to hear the results of medical tests taken last week.
- Lucas has exhausted all of the standard cancer therapies for rectal cancer and is waiting to hear if he is a candidate for any experimental treatments.
- Sam, who has lived through aggressive treatment for multiple cancers, is waiting to hear results from a test that will tell him if the fact that he is so very, very sick is due to one of them recurring.
- Lucy just had major abdominal surgery and is waiting to hear the results of the pathology report that will determine whether or not her cancer can be treated at all.
- Phil, who has been in remission from two different leukemias, had Read more »
*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*
September 5th, 2011 by AndrewSchorr in Opinion
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Steve Jobs in 2010
It was a bombshell that shouldn’t have been unexpected. Steve Jobs resigning. Anyone who saw him knew he was sick and, just watching him on television, it was obvious to me he was getting sicker. When you get so thin, when your color is not good, when you are probably taking heavy duty drugs that have side effects, you certainly don’t feel good. And when you don’t feel good, it is tough to think clearly, and make decisions with certainty. That is not a good thing for the CEO of one of the most successful corporations. It is actually a tribute to his will that he carried on so long. Many of the rest of us would be on a beach, taking it easy and celebrating every day. Steve Jobs celebrated every day by running Apple.
But at some point, given life is a terminal condition anyway, you have to accept that “the beast,” whatever it is in your case, is winning. I know that for myself. I have had a long remission with leukemia. But I know it could come back and even newer drugs might not “win.” I am thankful for the success treatment has had for so long. And I am sure Steve Jobs is thankful his diagnosis several years ago didn’t lead to his demise right then. We thank him, too, for iPhones and iPads and several other wonderful gizmos he has in the works that will blossom in the future.
Knowing when to call it quits – not accepting death – but accepting disability or a need to spend time differently – is a hard part of being a patient, it stinks. But it is reality. Read more »
*This blog post was originally published at Andrew's Blog*
July 28th, 2011 by AndrewSchorr in Health Tips, True Stories
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You know I am a cancer survivor – 15 years down the road from a leukemia diagnosis and enjoying a 10 year remission. So whenever something seems weird about my health it’s cancer coming back, right? Wrong! Just how wrong was proven last night. I am writing this from my hospital bed in Seattle.
The first symptom of a possible problem came three days ago when I had soreness in my right calf. A pulled muscle? Maybe. But I had not noticed straining it. Back at the gym the next day I had soreness again but thought it was no big deal. Last night it was worse. It hurt some to walk. I got home and, after my wife and son were asleep, got ready for bed. I had a slight fever and then noticed the right calf was not only sore, but swollen and warm. Very strange. I’d never seen that before.
Trying not to be stupid I called the 24-hour consulting nurse. She immediately began to focus on deep vein thrombosis (DVT), a worrisome condition that affects about two million Americans a year and can lead to a life threatening situation. She had a doctor call me. Normally those doctors would rather make a house call then send you to the more costly emergency room. But not this time. “Dr. Steve” urged me to go to the ER rather than let a DVT progress and endanger my life. An ultrasound exam would determine if it was really a DVT. Read more »
*This blog post was originally published at Andrew's Blog*
