October 22nd, 2010 by DrWes in Better Health Network, Health Policy, News, Opinion
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[Recently] the Wall Street Journal‘s front page story exposed a significant privacy breech of online personal information via the world’s most popular social networking site, Facebook:
Many of the most popular applications, or “apps,” on the social-networking site Facebook Inc. have been transmitting identifying information—in effect, providing access to people’s names and, in some cases, their friends’ names—to dozens of advertising and Internet tracking companies, a Wall Street Journal investigation has found.
The issue affects tens of millions of Facebook app users, including people who set their profiles to Facebook’s strictest privacy settings. The practice breaks Facebook’s rules, and renews questions about its ability to keep identifiable information about its users’ activities secure.
How could they? Imagine the nerve of marketers using Facebook ID’s to develop profiles on people using little socializing games! Facebook has a privacy policy! I was assured that if I set my privacy settings to “maximum,” this would never happen! To which I say: “Duh!” When it comes to money, people get awfully creative.
So while Facebook grapples with its latest public relations nightmare, we should realize our electronic medical record app vendors are doing exactly the same thing. Worse, it’s perfectly legal, even though each of use has been assured our privacy settings are set to “maximum” through the reassurances of the Health Insurance Portability and Accountability Act of 1996 (HIPAA) and the The Patient Safety and Quality Improvement Act of 2005 (PSQIA). Read more »
*This blog post was originally published at Dr. Wes*
September 11th, 2010 by Bryan Vartabedian, M.D. in Better Health Network, News, Opinion, True Stories
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Last week Robert Scoble announced on Cinchcast the news that his son, Milan, had just been diagnosed with autism. I often listen to his Cinchcasts, and the disappointment in his voice was heartbreaking.
Then I began to wonder: If one of my children were to receive a devastating diagnosis, would my first impulse be to share the news on a public platform? Probably not. And that, among a number of obvious things, is what differentiates me from Robert Scoble.
Everyone’s got their transparency threshold. You can see it with attitudes surrounding location applications. The importance of community to each of us varies tremendously. Read more »
*This blog post was originally published at 33 Charts*
June 22nd, 2010 by PhilBaumannRN in Better Health Network, Health Policy, Opinion
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Should we have a Bill of Rights for social media sites? It’s something we need to consider as such software becomes an integral part of our daily communications.
Some might say such a document isn’t needed, that we aught to take a buyer-beware approach. But I would argue that the core issue of the privacy threats of new media isn’t really privacy, but rather dignity. Having to go through fifty steps to set your privacy settings is undignified, even if your privacy is ensured.
So if we value human dignity, we aught to consider standards of dignity. A Bill of Rights, even if unenforceable, may at least remind us of the disturbing force of social technologies. What’s your take?
*This blog post was originally published at Phil Baumann*
