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Navigating Cancer Post-Treatment: Who Will Help You?

It is completely understandable if you associate the term “cancer survivor” with an image of glamorous, defiant Gloria Gaynor claiming that She. Will. Survive. Or maybe with a courageous Lance Armstrong in his quest to reclaim the Tour de France.  Or perhaps it is linked for you with heroic rhetoric and pink-related racing, walking and shopping.

Phil Roeder from flickr.com

I never call myself a survivor because when I hear this term, I recall my experience following each of four cancer-related diagnoses. It has not been triumphant. It’s been terrifying and grueling.  It hasn’t taken courage to get through the treatment.  It’s taken doing the best I can. I am not still here because I am defiant.  I am here because I am lucky, because I am cared for by good clinicians who treated my cancers based on the best available evidence, and because on the whole, I participated actively in my care. But mostly I am here because each successive diagnosis was made as a result of being followed closely with regular checks and screenings and because my doctors responded effectively to questionable findings and odd symptoms.

There are 12 million Americans living today who have been treated for cancer. Not only are we at risk for recurrences but, as Dr. Julia Rowland, director of the Office of Cancer Survivorship at the National Cancer Institute, notes, “Research shows that there are no benign therapies.  All treatment is potentially toxic and some therapy may itself be carcinogenic. Today, people are living long enough to manifest the health consequences of efforts to cure or control their cancer.”

Who amongst our clinicians is responsible for helping us watch out for those consequences for the balance of our lives? Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

Choosing The Best Health Care For You: What Information Helps You Decide?

Our ailing economy has boosted the number of people who are unemployed, without health insurance or with minimal coverage. The popularity of high deductible health plans is soaring as employers and individuals look for affordable insurance.  Twenty-nine percent of bankruptcies are said to be caused by medical bills. Many of us now choose health care services and providers carefully, trying to stay within tight budgets.

The American people, long protected from the price of health care by insurance, are now forced to act as consumers.  This situation is a free marketer’s dream.  According to this model, we will rationally calculate the price/quality trade-offs of each doctor visit, procedure, test and drug.  We will stop overusing services. We will demand better care. And the result will be reduced health care costs for the nation while the quality of care and the health of individuals will remain the same, if not improve.

There’s nothing like a good theory.

But the theory can only be tested if a) It’s easy to find publicly reported, relevant quality information about the services we need, matched with what we would pay out of pocket; and b) We use that information as the basis of our health care decisions. Neither of these conditions can be met today.

A new Cochrane review Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

Patients: Confused Tourists In The World Of Health Care

Being diagnosed with a serious illness is like being drop-kicked into a foreign country: you don’t know the language, you don’t understand the culture, you don’t have a map and you desperately want to find your way home.”

Eric Parker @ flickr.com

I wrote that following a cancer-related diagnosis six years ago that resulted in removal of a part of my colon. One year ago this week I was in the hospital longing for home while recovering from surgery for stomach cancer. Today I am traveling in Spain (feeling fine and minus the drop-kicked part) and am reminded of this analogy every day.

For example, I couldn’t figure out how to punch my ticket on the city bus. The driver told me in Spanish that I barely comprehend to turn the ticket over. No luck. His voice rose: “You put it in upside down.” Again, no luck. He shouted: “Use the other damn machine!”

Stupid tourist.

There’s a man who sits at the front desk at the clinic where I get most of my cancer care. He greets every person who walks past his desk as though Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

Convincing The Public Of The Importance Of Evidence-Based Medicine

On October 4th, 2011, I delivered the Alex Drapos Memorial Lecture at Clark University as part of their ongoing President’s Lecture Series.  Here’s what Jim Keogh, Director of News and Editorial Services, reported about my talk:

Gruman said American health care treads a fine line between trying to serve the good of the many and the interests of the individual. But no one has yet figured out a cost-effective, yet humane, way to do both. She asserted that the skyrocketing expense of health care — expected to rise to $4.64 trillion by 2020 — isn’t reflected in the quality of treatment people receive.

“Should we be able to choose whatever medicine we want, even if there’s no evidence it’s effective?” ~ Jessie Gruman

“There is much ineffective, extra, inappropriate care being delivered,” Gruman said. As an example she cited Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

How Contagion Shows Us The Importance Of Science In Today’s World

Contagion is a thriller about a virus that rapidly spreads to become a global epidemic. There aren’t enough coffins. Gangs roam neighborhoods like ours because police have abandoned their posts, fearful of exposure. Garbage fills the streets because sanitation workers are dying. As scientists work feverishly to understand the virus and develop a vaccine, public panic unravels the fabric of civil society, fueled by terror and rattled by false claims of a homeopathic cure promoted by a charismatic charlatan.
The movie has grossed $76 million worldwide since it opened on September 9th.  It has all the elements a successful movie needs: a just-believable dystopian vision of the future, flawed good guys, an evil schemer, suspense, heroic action…the works.

And while it’s an action-thriller first and foremost, you don’t have to concentrate hard to notice that it also shows:

  1. Why the Federal government is necessary: its authority to communicate, negotiate and work with other nations to solve a global problem; its ability to exert authority across state lines and to marshal resources immediately to protect its citizens from peril with no expectation of profit.
  2. How scientific research is iterative and complicated, not bumbling or malicious. Research is conducted by scientists—normal people with normal lives—who are Read more »

*This blog post was originally published at Prepared Patient Forum: What It Takes Blog*

Latest Interviews

IDEA Labs: Medical Students Take The Lead In Healthcare Innovation

It’s no secret that doctors are disappointed with the way that the U.S. healthcare system is evolving. Most feel helpless about improving their work conditions or solving technical problems in patient care. Fortunately one young medical student was undeterred by the mountain of disappointment carried by his senior clinician mentors…

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How To Be A Successful Patient: Young Doctors Offer Some Advice

I am proud to be a part of the American Resident Project an initiative that promotes the writing of medical students residents and new physicians as they explore ideas for transforming American health care delivery. I recently had the opportunity to interview three of the writing fellows about how to…

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Latest Book Reviews

Book Review: Is Empathy Learned By Faking It Till It’s Real?

I m often asked to do book reviews on my blog and I rarely agree to them. This is because it takes me a long time to read a book and then if I don t enjoy it I figure the author would rather me remain silent than publish my…

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The Spirit Of The Place: Samuel Shem’s New Book May Depress You

When I was in medical school I read Samuel Shem s House Of God as a right of passage. At the time I found it to be a cynical yet eerily accurate portrayal of the underbelly of academic medicine. I gained comfort from its gallows humor and it made me…

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Eat To Save Your Life: Another Half-True Diet Book

I am hesitant to review diet books because they are so often a tangled mess of fact and fiction. Teasing out their truth from falsehood is about as exhausting as delousing a long-haired elementary school student. However after being approached by the authors’ PR agency with the promise of a…

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