October 26th, 2011 by AndrewSchorr in Opinion
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The new book is out about Steve Jobs. You may have already heard that he regretted delaying surgery for months for a type of pancreatic cancer and explored alternatives, including dietary changes. He told his biographer he later came to the conclusion that it was the wrong personal health decision.
If you check out social media conversations about health, the value of dietary changes is always a hot topic. Can becoming a vegetarian, for example, arrest the development of cancer or prevent its recurrence?
This week I will participate in a webinar on social media and breast cancer. One other panelists helps run a patient advocacy group. The other is a respected nurse who helps run the breast center at Johns Hopkins. In a preliminary discussion they each noted that Read more »
*This blog post was originally published at Andrew's Blog*
October 19th, 2011 by AndrewSchorr in Health Policy, Interviews
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If you’ve read my blogs for a while, or look up some past blogs, you’ll see I have been frustrated at times with the FDA. Yes, they have a tough job protecting us from medical products that are unsafe and/or ineffective. But when it comes to cancer, where we have few “homerun” therapies, I wish they were a bit more liberal. A “bunt single” might be good enough. You may have read how I have been critical of Dr. Rick Pazdur, the FDA leader for oncology drug approval. Some desperate patients and family members have referred to him as “Dr. No.”
Just the other day I interviewed a respected breast cancer survivor and patient advocate who has high respect for Dr. Pazdur. Musa Mayer of New York City is a 22-year breast cancer survivor and author of three books about breast cancer. She’s devoted her life to educating other patients about cancer and also playing a role in public policy. She has become a favorite patient representative on FDA cancer advisory boards and regularly weighs in when breast cancer drugs are being considered.
In my interview with Musa, she explained Read more »
*This blog post was originally published at Andrew's Blog*
October 15th, 2011 by AndrewSchorr in Opinion, True Stories
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It’s too young to die at age 56. It’s too young to die when you have four children and a wife. It’s too young to die when you have led one of the most successful technology companies ever. It’s too young to die when you are very rich, have so much more to do and to give back. But pancreatic cancer doesn’t care. This time, again, one of our most deadly cancers won.
Medicines, nutrition, surgery, liver transplant, apparently Steve Jobs, celebrated CEO of Apple, tried them all. But, as I wrote in a recent blog, continuing was just too much. To be sure, Jobs did not have the most common type of cancer in his pancreas. His was a neuroendocrine tumor and life expectancy can be longer. But, as has been noted widely in the media, Steve Jobs came to know that his mortality clock was ticking. His eight year-survival was probably what he knew he was facing all along. Read more »
*This blog post was originally published at Andrew's Blog*
September 28th, 2011 by AndrewSchorr in Opinion
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As we often say at Patient Power, there is no one source for medical information. The same is true when it comes to support for patients. No one organization is THE place to go and has all the answers.
That may sound obvious. But just as it has taken a long time to dislodge the “Doctor as God” perception or “I’m the doctor and you’re not” put-down of “problem patients,” there have been some non-profit advocacy groups that have seen themselves as the “be all and end all” for conditions they cover. In both cases, the arrogant doctor and the “100,000 pound gorilla” organization, neither took what I call the “big tent” view. In their view, they were the tent and there was no room for anyone else. That’s never been our view and I wanted to tell you how we are celebrating our relationships with a multitude of partners, many of whom are becoming friends. Read more »
*This blog post was originally published at Andrew's Blog*
September 23rd, 2011 by AndrewSchorr in Opinion
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Thank God television and movie script writers are starting to “get it.” Cancer, “The Big C,” doesn’t always kill people, or maim them, or steal their dreams. Lately there have been new TV shows acknowledging cancer as part of life that many can live through. There’s a new movie coming called 50/50 about a young adult man with cancer (important to acknowledge it in this age group!). I hope he doesn’t die in the end. But from the preview, it’s clear he talks to people about it – including young women he is trying to date. It’s a comedy. On Showtime on cable TV there’s a series, The Big C, where actress Laura Linney plays a teacher with melanoma and a year to live. The good news is they had a second season!
My point is there are now nearly 12 million cancer survivors. Three of work them at Patient Power (one is me, almost 61, one is in her 50’s, one is just 18). More and more of us do not have just months or a year to live. We are true survivors. We have to start watching our cholesterol and taking baby aspirins, we have to watch our weight, plan for retirement or manage a fixed income. For the young one, it’s plan for college. We have to think about who we might vote for in the next election. We are LIVING! Maybe for a full lifespan, maybe not, but living each day with purpose.
Yes, it’s true there could be “another shoe” that drops, Read more »
*This blog post was originally published at Andrew's Blog*
