Let me start by saying I really like MD Anderson Cancer Center. There is a lot to like. Take their tag line for example: “Making care history.” If anyone finds a cure for this cancer or that cancer, MD Anderson will have a hand in it, I’m sure. Hospitals could also learn a thing or two about the meaning of comprehensive care, clinical integration, and customer service from MD Anderson is well.
I have another reason why I like MD Anderson so well: They saved my wife’s life. You see, she was diagnosed back in November of 2004 with stage four non-small cell lung cancer (NSCLC). As anyone familiar with lung care knows, lung cancer is a very tough adversary. It’s an even tougher adversary when your insurance company insists that your local community hospital and oncologists are “just as good” as MD Anderson’s in terms of quality and outcomes.
You guessed it. In 2004, my wife and I had to fight long and hard to get our insurance carrier to authorize my wife care at MD Anderson, an out of network provider. I’m happy to say we won that fight back in 2004 and again just last week when my wife’s employer’s new insurance carrier refused to authorize her continued care at MD Anderson. You see, her new carrier wanted to rehash the whole medical necessity thing all over again.
Now you would think that a world-class organization like MD Anderson would do everything possible to help prospective patients deal with these kinds of insurance issues. After all, they seem to do everything for you once care is authorized. But you would be wrong. Read more »
*This blog post was originally published at Mind The Gap*
Some people may tell you that healthcare IT will solve many of the quality and cost problems in healthcare. I don’t believe them.
I know a 70-year old man named Carlos (not his real name) who was hospitalized following a bout of hydrocephalus. Hydrocephalus is a build-up of fluid in the skull, which affects the brain. Among other things, people with hydrocephalus can be confused, irritable, and nauseous. Carlos had all of these symptoms.
Carlos’ problem was fixable by inserting a special kind of drain in his head called a “shunt.” This kind of shunt is, essentially, a series of catheters that runs from the brain into the abdomen, and which drain the excess fluid. You can’t see it from the outside, so it’s meant to stay inside of you for a very long time.
For a week after Carlos’ shunt was installed, his symptoms completely disappeared. But they soon started to re-emerge. Worried, his family took him to the hospital. Doctors found that his hydrocephalus was back — the shunt wasn’t draining properly. They admitted him to the hospital, and the next day they put in a new shunt. The surgery went well.
But again, about a day later, he started to have the same kinds of symptoms. The doctors sent him for a CT scan, which showed, to their surprise, no problems with the shunt. Unsure of what to do, they decided to wait and see if the symptoms resolved. It was possible, they thought, that the symptoms were from the quick drainage of fluid through the shunt. Read more »
*This blog post was originally published at See First Blog*
I’m a physician trained in sports medicine, and a chronic back pain sufferer. I first injured my back in 2001 when lifting a heavy bag and trying to sling it onto my shoulder. The pain was so severe that I couldn’t get off the floor for three days. I eventually ended up in the ER with an “unremarkable” MRI. The cause of my pain was never explained — all I knew is that I hadn’t herniated any disks.
Years later my back pain still flares up occasionally, and I’ve never really understood how to prevent it or treat it effectively. This has been very embarrassing for me, since I’m supposed to be an expert in this field. But today I finally got some insight into the real cause of my pain — not from a physician or physical therapist, but from a yoga instructor. Read more »
Partners in Health is building a state-of-the-art teaching medical facility in Mirebalais in Haiti’s underserved Central Plateau.
My niece Annie helped design the waste and water treatment systems of the project as part of her engineering internship with Northeastern University, and will be joining the Partners in Health group upon graduation. It’s so inspiring to see this wonderful project coming to fruition and to know that she’ll be part of it.
Recently, I reconnected with a long-lost local PWD (person with diabetes) named Ryan. Last time Ryan and I saw one another we were talking about diabetes goal-setting and dealing with wicked bouts of burnout. And this week I received an email from him with a brilliant idea about how to stay motivated towards setting — and reaching — diabetes-related goals.
“I’ve had this ‘pyramid’ for about three months now. Just something that I keep near my desk to keep me focused on my diabetes. After completion of the pyramid, I have no clue what I will do but some kind of celebration will be in order,” he wrote, and attached a slide to his image. And when I opened it, I was like “whoa.”
He had created a pyramid of his diabetes goals. Tangible goals — real-life goals — that are both achievable and ambitious, all at once. I thought this was so clever because it is a constant but non-threatening reminder of what diabetes goals are most top-of-mind for him. (Also, having a celebration at the end of that pyramid completion sounds like a quality idea. Perhaps a Fudgy the Whale?)
I’ve been working towards gaining better control of my diabetes (and overall health) lately, and I love the idea of something I can print out, stick to my fridge, and remain inspired by. I liked the idea of a pyramid, but I kept picturing a huge bingo hall in my mind, with a whole bunch of PWDs sitting at the tables with glucose tabs and bingo markers at the ready. But the trick wasn’t getting four in a row, it was filing the whole card.
I thought about my own personal goals and created this:
There are a few not-necessarily-diabetes-related goals on there (like “lose 6 pounds,” which is because I’m still trying to de-flump), but there are a lot of diabetes goals that aren’t unique to my particular circumstances. Since I’m trying to emerge from some diabetes burnout, my goals aren’t as tight as they were a few months ago (i.e. the slow progression from an A1C over 8 to one under 7.5). But these are real, and I’m hoping to fill the card within six months. Thanks for the fun idea, Ryan!
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I’m a physician trained in sports medicine, and a chronic back pain sufferer. I 
