This past weekend Oscar-nominated Hollywood and Broadway actress Jill Clayburgh died at age 66. The cause was chronic lymphocytic leukemia (CLL), which she had been fighting, privately, for 21 years.
As you may recall, I, too, have CLL and I was diagnosed at the same age, 45. For me, I am 16 and a half years into that “battle” although, fortunately, I have been feeling very good in the ten years since I received treatment as part of a breakthrough clinical trial. While I have no symptoms and take no medicine I do not consider myself cured.
So when someone like Ms. Clayburgh dies of CLL after 21 years, I can’t help but wonder if the disease will shorten my life too, even if I feel good now. That brings up the question of what do we do with the time we have when we know we have had a serious diagnosis and the clock may be ticking for us — or not? Read more »
*This blog post was originally published at Andrew's Blog*
About 10 days ago I appeared in Phoenix as a speaker at a regional education seminar put on by the Leukemia and Lymphoma Society. My topic was sharing my experience as a participant in a clinical trial. I was delighted to do so, as I feel that trial saved my life and restored me to good health.
I am hoping my words encouraged others to consider being in a trial. There are no guarantees of the result, but trials are always worth considering. Unfortunately, few patients do. That may limit their choices and certainly holds back research that could help others. What a shame.
Clinical trials are defined as human subject research. It is through these trials that we determine if new drugs or devices can better serve patients than what is currently available. Clinical trials are available for almost every disease — although finding these trials can be challenging. Read more »
*This blog post was originally published at Andrew's Blog*
Nobody is in the hospital these days feeling good. Regulations have made it so sick people are hospitalized and not-so-sick people are usually outpatients. People who are horizontal are there to have procedures, take heavy duty meds, rest and, hopefully, get better.
Hospitals have increasingly put in sophisticated television systems so you can be in bed and distracted and entertained. But that is not restful for everyone. Here’s an example from this past weekend that stands out:
Mark Dantonio, the coach of the Big Ten’s Michigan State Spartan college football team, was diagnosed with a heart attack right after last week’s game. Boom. He was hospitalized. Boom. He had a stent put in to unblock at least one artery. This past Saturday he was still in the hospital resting and recovering, right? In the hospital, yes. Resting, no! Are you kidding? Keep the coach down during the big game against Wisconsin, a Big Ten rival? Read more »
*This blog post was originally published at Andrew's Blog*
The old joke about psychological therapists is they are among the biggest consumers of therapy themselves. Lately, I have been noticing more and more how a significant portion of the people we meet wearing white lab coats have a very personal connection to the medical work they do. For them it is not a job, a meal ticket, or just putting their years of training into practice, it is a mission connected to something in their past, something in their own body, or the health of a loved one.
A recent example is Kaiten Kormanik. She is 23 and has had the genetic condition PKU since birth. She has to follow a strict low protein diet or otherwise risk severe negative effects on her brain. If you toured the labs of The Children’s Hospital of UPMC in Pittsburgh you might bump into her as she does research for her Ph.D. on, guess what?- genetic illnesses in children. And she often works alongside Dr. Gerald Vockley, the very expert physician who guides her care. As you can imagine, Kaitlen thinks about her own childhood and the faces of other children every day. You can hear her story on one of our recent programs.
Irl Hirsh, M.D., at the University of Washington, is one of America’s most famous diabetes doctors. He has diabetes himself and has all the challenges everyone with this disease has in managing it. You can hear his story on one of our earlier programs on diabetes. Read more »
*This blog post was originally published at Andrew's Blog*
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This past weekend Oscar-nominated Hollywood and Broadway actress Jill Clayburgh died at age 66. The cause was chronic lymphocytic leukemia (CLL), which she had been fighting, privately, for 21 years.
Nobody is in the hospital these days feeling good. Regulations have made it so sick people are hospitalized and not-so-sick people are usually outpatients. People who are horizontal are there to have procedures, take heavy duty meds, rest and, hopefully, get better.
