October 27th, 2014 by Dr. Val Jones in Announcements, Medical Art
Tags: Alzheimer's, Alzheimer's Association, Aricept, Behavioral Problems, Cognitive Impairment, Country Music, Dementia, Documentary, End Stage Alzheimer's, Glen Campbell, I'll Be Me, Mayo Clinic, Movie, Movie Review, Neurology, Outbursts
No Comments »
Country music legend Glen Campbell is dying of Alzheimer’s disease. In an effort to raise awareness of the illness he and his family made the brave decision to bare their lives by creating a documentary of Glen’s farewell tour. I highly recommend that you watch this film with your loved ones… and a box of Kleenex.
One of the most remarkable aspects of Glen’s disease was the preservation of his musical abilities despite severe cognitive impairment. Although he rarely knew where he was or even how to tie his shoes, he was able to perform songs in front of live audiences. With redirection and prompting, he managed to participate in 151 concerts across the United States within the span of ~18 months. Accompanied by his gifted guitarist son and daughter, and his doting fourth wife Kim, Campbell was able to maintain his musical self for longer than his physicians ever anticipated.
The documentary held nothing back – from violent outbursts brought on by paranoid delusions of golf club theft, to inappropriate table manners, to hypersexuality triggered by too high a dose of Aricept – the trials and tribulations of being a caregiver for someone with dementia were painfully acute. In brief moments of insight, Glen himself would manage to stammer a “Thank you. For being so nice to me. I have been an ass.”
One of the saddest moments of the movie was a brief clip of his daughter testifying before congress. She explains that memories are what lives are made of – and that although she is holding fast to the memories made with her dad, she knows that soon he will not even know who she is, and that their time together will be meaningless to him. Campbell listens silently next to her with a pained expression and misty eyes.
The movie’s final song, artfully strung together from clips of Glen singing repeat phrases into a studio mic, is haunting:
“I’m Not Going To Miss You”
I’m still here, but yet I’m gone
I don’t play guitar or sing my songs
They never defined who I am
The man that loves you ’til the end
You’re the last person I will love
You’re the last face I will recall
And best of all, I’m not gonna miss you.
Not gonna miss you.
I’m never gonna hold you like I did
Or say I love you to the kids
You’re never gonna see it in my eyes
It’s not gonna hurt me when you cry
I’m never gonna know what you go through
All the things I say or do
All the hurt and all the pain
One thing selfishly remains
I’m not gonna miss you
I’m not gonna miss you
Alzheimer’s is a terrible, cruel disease. I share the frustration of the Mayo Clinic neurologists who treated Glen Campbell – unable to do much more than simply document his decline and mentally prepare his family for the next stages of the disease. To all those who are taking care of people with Alzheimer’s I offer my sincere admiration and respect. To those who face a genetically higher-than-average chance of contracting the illness (such as myself), I tremble and hope for a cure.
December 30th, 2011 by RamonaBatesMD in Medblogger Shout Outs, Medical Art
Tags: Alzheimer's, Asystole, Birth, Bloggers, Blogging, CBC Today, Death, doctorblackbear, ImpactedEDNurse, Intellectual Disability, JordanGrumet, Medicine, Skeleton Typogram, The Boerewors Emergency Medicine Chronicles
No Comments »
The Boerewors Emergency Medicine Chronicles has a great post which I think is worth your time: On alzheimer’s
……..…I think it is beautifully written and provides a real window into the difficulty of loving someone who has this disease.
“The thing with this sentence, this arrest of dementia, is that its greatest victims aren’t those who have it. That’s not to say that the diagnosis isn’t dreadful for the recipient, but there is a peculiar and particular hammering sadness for those that love and care for an Alzheimer’s spouse or parent.
It is a wearying and lonely obligation, but with the added cruelty that the person you’re looking after vanishes, escapes before your eyes. In the end, you’re caring for the case that someone came in………”
………………………………….
Check out this post from @JordanGrumet who blogs at In My Humble Opinion: From Birth To Death Read more »
*This blog post was originally published at Suture for a Living*
December 7th, 2011 by Berci in Medical Art
Tags: Gastroenterology, Hemorrhoids, Medicine, Medicine 2.0, Venn Diagram, Visualization
No Comments »
It’s quite clear not everyone would like to read long medical reports and text as sometimes a well-designed and structured graph can say more than a hundred words. Do you remember the Wired article about the blood test makeover that described how our blood test results would be designed to show more easily understandable information to patients?
Well, this Venn diagram shows many things about hemorrhoids and related symptoms. And it’s not even a new infographics published on a blog but is from an old textbook which means the concept has been there for a long time but it always disappears in medicine.
*This blog post was originally published at ScienceRoll*
September 8th, 2011 by StevenWilkinsMPH in Medical Art, Opinion
Tags: Clinical Skills, Communication, Competency, Doctor Patient Relationship, Empathy, Engagement, High Quality Outcomes, Infographic, Low Malpractice Risk, Medication Adherence, Patient Compliance, Patient Satisfaction, Patient Trust, Self-disclosure, Trust
No Comments »
Often the simplest solutions to problems are the best. So it would seem when it comes to the impact that increasing patient trust in physicians could have on many of the intractable challenges that face the health care industry everyday like non-adherence, lack of involvement, poor health status, dissatisfaction and so on.
I explore the link between patient trust and outcomes in the following infographic I curated and designed. What surprised me is how a patient’s level of trust in their doctor, like so much of what I talk about in this blog, boils downs to the patient’s perception of the physician’s ability to communicate: Read more »
*This blog post was originally published at Mind The Gap*
