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Female Wounded Warriors

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I am a proud University of Arkansas alumni. The current issue of the alumni magazine has a short segment on Janet Cater and her work with female wounded warriors. Her research on military women amputees earned her a doctoral degree in rehabilitation counseling.

I did a Google search and was happy to find she has a blog: Female Wounded Warriors Posterous. There were only four entries but they allow an understanding of her research project.

The first one, Institutional Review Board Information (November 10, 2009), lays out the goal:

I am seeking to understand the psychosocial adjustment issues experienced by women veterans who have had a traumatic amputation. I am interested in your life experience.

The second one, Volunteer To Help Future Wounded Women Warriors, presented the goal and method again:

My study seeks to understand the adjustment issues faced by American women warriors who experience a traumatic amputation. At the present time there is no published research. As the number of women warriors returning with physical disabilities increases, it is vital that medical and mental health support staff understand the unique challenges these women face. Over 220,000 female soldiers have been deployed to Iraq and Afghanistan for one or more tours of duty. As of August 2009, a total of 121 women warriors have died, and it is estimated over 620 have received serious injuries. This study will use internet interviews using Skype to understand this life experience. Each woman will be invited to tell her story of how she adjusted to life as an amputee with the assurance of confidentiality. Read more »

*This blog post was originally published at Suture for a Living*

Are Doctors Afraid Of Social Media?

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We sometimes forget that public transparency can be scary. I’ve found this particularly true for doctors. And they tell me so. This tweet from MD Anderson’s Dr. Garcia-Manero hints that the daily digital repartee that I take for granted isn’t so easy for the newbie:

And this comment came in today from a rheumatologist, Dr. Irwin Lim of BJC Health. It illustrates nicely the hesitancy physicians sometimes feel:

Our clinic’s business manager was pushing me to blog as a means to improve the profile of our group musculoskeletal clinic. I found myself quite afraid of this, as I had not previously participated in social media. I was also wary that I could not control patient comments. Eventually, I tiptoed into LinkedIn. I then started reading blogs and came across yours. Your posts have been very useful and have improved my resolve. A few days ago, I posted my first blog, and have since written a total of 6. It’s been quite enjoyable so far. The social media consultant engaged by the clinic wants me to now create content for YouTube. Some fear has returned, but I’ll hopefully be able to get over this, too.

Is fear specific to doctors? No, but I think the issues are magnified with medical professionals. Image, social voice/personality, permanency, and fear of legal repercussions are among concerns that are disproportionately felt by doctors. So can we mitigate this fear in any way and break the barriers to entry for doctors? Read more »

*This blog post was originally published at 33 Charts*

The War Against Cancer: A New Perspective

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Myths and misconceptions about cancer abound. Oncologists are frequently criticized for torturing patients by burning, cutting and poisoning without making any real progress in the war against cancer. Siddhartha Mukherjee, an oncologist and cancer researcher, tries to set the record straight with his new book The Emperor of All Maladies: A Biography of Cancer.  

It is a unique combination of insightful history, cutting edge science reporting, and vivid stories about the individuals involved: The scientists, the activists, the doctors, and the patients. It is also the story of science itself: How the scientific method works and how it developed, how we learned to randomize, do controlled trials, get informed consent, use statistics appropriately, and how science can go wrong. It is so beautifully written and so informative that when I finished it I went back to page one and read the whole thing again to make sure I hadn’t missed anything. I enjoyed it just as much the second time. Read more »

*This blog post was originally published at Science-Based Medicine*

About Patient Autonomy

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Recently, I was involved in a discussion on an email list serve and decided to takes some of my comments on patient autonomy and blog about them. This arose following a debate about whether the term “patient” engendered a sense of passivity and, therefore, whether the term should be dropped in favor of something else, like “client” or something similar.

Having participated in the preparation and dissemination of the white paper on e-patients, I don’t see the need for “factions” or disagreements in the service of advancing Participatory Medicine. As Alan Greene aptly stated: “This is a big tent, with room for all.”

I want all of my patients to be as autonomous as possible. In my view, their autonomy is independent of the doctor-patient relationship that I have with them. They make the choice to enter into, or to activate or deactivate, the relationship with me. They may ignore my input, seek a second opinion, or fire me and seek the care of another physician at any time. They truly are in control in that sense. The only thing I have control over and am responsible for is trying to provide the best advice or consultation I can. Read more »

*This blog post was originally published at eDocAmerica*

Good Health Information Can Save Lives

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My colleagues at Harvard Health Publications and I have a mission: To provide accurate, reliable information that will help readers live healthier lives. We work hard to fulfill that mission, and the feedback we get from folks who read our newsletters, Special Health Reports, books, and online health information indicates we are on the right track. Every so often we hear something from a reader that makes me especially proud of the work we do.

This letter was recently sent to the editor of the Harvard Women’s Health Watch:

One of your mailings undoubtedly saved me a lot of grief. (My kids, anyway.) I was aware of a woman’s heart attack symptoms being different from a man’s, and your brochure contained a paragraph confirming that. Early in June I was packing for a trip to celebrate my brother’s 90th birthday, at the same time a ditching project was being done in my back lot. Trying to deal with several matters at the same time is a talent I’ve outgrown, at 88, so didn’t think too much of the sudden fatigue and vague aches I felt in jaw & arms. I crashed for a nap in my recliner, felt OK afterwards, and figured it was just stress. The next day I was ready to leave, but got to thinking of those symptoms, and the fact the brochure had arrived at just that time, and wondered if it was more than coincidence and maybe I should pay attention? Didn’t much like the idea of something happening out in the middle of nowhere, so took myself to the fire hall where an EMT was on duty. He ushered me into the ambulance, did an EKG, and soon I was being helicoptered on doctor’s orders to St. Joseph’s Hospital. There I had 3 stents installed, and they apparently are doing their job. Thank you! Read more »

*This blog post was originally published at Harvard Health Blog*

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